Liz - posted on 10/21/2013 ( no moms have responded yet )
Hi I just was wondering how some of the older fontan kids are doing? My son is now 20 and ive started to worry about his future. His activity level is low. I dont know if its cause he can't or won't. Being limited physically when he was younger has now led to a lazy adult. Help ! His health is really good but struggles most with his lungs and has a rather large belly but rest of his body is normal size. Would love to hear from other parents of fontan young adults!