Rodriguezb101 - posted on 06/19/2014 ( 2 moms have responded )
My name is Barbara. I am the mother of an 11 y.o. boy (soon to be 12 in September). He just got diagnosed with Tourette syndrome by his Neurologist. I was in shock and cried all night I couldn’t fall asleep. My world crumbled in a minute. I left the office with more questions than answers. He also has ADHD. He is on medication (Metadate 20mg). They prescribed Respideral for the tics. I was never comfortable giving him medication on the first place. I did it because I had the school calling me on daily basis for me to go and pick up my son because he was not behaving. I also learned that one of the side effects of the Metadate is the tics and hallucination. My son does the tics he blinks his eyes more than normal, he hears voices now; he makes humming sounds that he can’t control, sometimes he claps and claps for no reason, and he sniffs constantly. Falling asleep is another struggle. I just make sure that we go outside. He goes for a bike ride and he gets tired. Other wise they will prescribe something else to help with the sleep.
How many pills can a child take at such a young age? What about his organs like his kidneys, and liver do they get affected?
There has to be something else out there other than just a pill for everything.
What if I just take him off the medications? Will the tics go away? I really have a problem accepting the fact that he has another diagnosed on top of having ADHD. Where do I go from here? Is his condition going to get worst with time? Are they any support groups? I live in MA. Am I neglecting my child if I don’t give him the medicine?
He has such a great personality. I see it when he doesn’t take the medication. When he takes it he is like a zombie. Even his tone of voice changes.
Also the Neurologist suggested taking him to Psychiatrist to switch the ADHD medicine to something else. The waiting list is like 6 months. I guess everyone is getting medicated in my state.
Are they any summer camps that he can attend? I am not working and he gets SSI.
My life is on hold I was going to start a new job but my son has so many appointments schedule that I will need to take a lot of time off from work. It is very hard to deal with this situation alone. I feel like I am in a dark hole.
Thanks for reading.