my son has been diagnosed with SMA type 1

Ashlee - posted on 05/13/2009 ( 3 moms have responded )




my son is 3 months old and has been diagnosed with SMA type 1 spinal muscular atrophy and im just trying to find someone that has gone through or is goinging through the same thing as me so i can have someone to talk to that understands how to feel cuz i certainly dont know how to feel and im kinda lost if anybody has any advice or ANYTHING please let me know Thank you so much


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Teri - posted on 03/01/2011




Hi there, I know you posted this awhile ago, but I just saw it. My grandson is 15 months old today, and he is a Type 1. We live in the Reno, NV area. Where are you? I'd love to connect you with my daughter.

[deleted account]

I'm sorry to hear about your son's diagnosis. I don't know anyone with SMA, but I did know a mom from another online group whose son was diagnosed - I remembered she had posted some SMA resources to that group, so them and I've linked to them below. I hope they help you find the answers and comfort you need right now.

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