My son has several gastrointestinal issues does anyone have any experience with this?

Jessica - posted on 10/13/2009 ( 38 moms have responded )

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He was diagnosed with milk soy protein intolerance as an infant and has always had problems having a bowel movement. He's now 29 months and still has stooling problems. We've been to specialist and our regular doc and just cant seem to get answers any help, info and prayers would be great.

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Stephanie - posted on 10/14/2009

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I am assuming he was tested for celiac in all of your tests. Have you tried a gluten free diet, you would be surprised how much food has gluten. I may be biased as a GI nurse but some of the markets for those diseases don't show up. We don't like to do them but maybe he needs an EGD and colonoscopy. The only way to tell for sure if he has some of those diseases is to get into the small bowel with a scope.

Jennifer - posted on 10/13/2009

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I agree with colleen have him be seen by a allergist if not yet. I have a six year old that has major allergies problems since he was 1, he is allergic to eggs and alot of other stuff but an allergist may help him! if you need anymore help just let me know!

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Christie - posted on 12/06/2012

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my daughter has been having similar issues for quite some time. Just found out it may be her gallbladder. Found a site called gallbladderattack.com that explains alot about stomach acid...might be helpful...

Christie - posted on 12/06/2012

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my daughter has been having similar issues for quite some time. Just found out it may be her gallbladder. Found a site called gallbladderattack.com that explains alot about stomach acid...might be helpful...

Gina - posted on 10/19/2009

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try a casein free diet my little sister with autism is on this and she has turn a 360. Sometimes finding the right allergies can really improve. My mom givers here potato milk. check for things like whey and casein in products b/c those are milk derivatives. Try again with the allergist b/c allergies change frequently and if the child is two under it is hard to accurate reading even with blood work b/c again with my litter sister it took 5 years to find she had a soy allergy. Also try the blood work that test for a longer response time some allergies build up over time. I speak from experience on this. I have a delay reaction from 3-6 hrs later if my food gets contaminated with shellfish this has already sent me to the hospital twice from restaurants poor practices. I hope this helps. Keep up with the problem and don't let any doctor tell you that there is nothing wrong b/c you know your child

Jessica - posted on 10/17/2009

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He gets lots of fruits and veggies some days that's all he'll eat and as far as water goes that's his main drink. He gets milk with meals but water inbetween time so I don't feel that's an issue. Yesterday he wouldn't eat at all just drank fluids all day. He's really bloated so hopefully he can go again soon.

Natishia - posted on 10/16/2009

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Jenny I had an earilier post where I told about myself. Since I was a baby I was constipated, extra fruit and water DID NOT help. My hip and back was out of alinment. When I was 13 my grandma took me to a Chir. and after lots of visits, I was good to go. And now if I have any problems I go for an adjustment. Yoga type stretches and weight lifting keep me all lined up.

Melissa - posted on 10/16/2009

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Have you consulted a naturopath that does "muscle testing"? It's noninvasive and can find underlying issues.

Melissa - posted on 10/16/2009

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I have a friend whose son has issues with mega colon. He gets pugged up really bad. If you know he has a dairy intolerance you need to make sure it is totally out of his diet. I know it is hard to do but well worth it. Liquid fiber supplements and plenty of pure water and a probiotic supplement (I use sunshine heros from NaturesSunshine), might help ease symtoms. Also might want to check out other possible food allergies.

Bonita - posted on 10/15/2009

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Post a reply! Try more fluids in his diet and fruit. The longer the problem the worse it can get bs.

Jenny - posted on 10/15/2009

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my 16 year old son has had the same problems since he was born, he has been to several doctors and they had to ream his butt a few times. also they had me giving him a tablespoon of mineral oil in his bottles, that helped keep him so he wasnt waiting for days to go. it has gotten better since he has gotten older, but he still has times where he cannot go for days. there was never any answer to why this was happening. I hope you get an answer and i wish you the best of luck.

Jessica - posted on 10/15/2009

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We've done the tests for celiacs and food allergies and those were negetive so now were looking into other possibilities with his drs. Since the food allergies can be a false negetive in a blood test we might have to biopsy his intestines. So we'll see what we need to do next thanks for all the info and support.

Maurita - posted on 10/15/2009

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Oh, I just remembered something else too. When my sons have this problem I give them this all natural intestinal formula created specifically for children. It is in a liquid form and not difficult to take. You just adjust the dosage for the child's age/weight. The website is web4.herbdoc.com or you can just look up Dr. Shulze in a search engine. The product is called Intestinal Formula 3. Another product he has that deals with the pain and discomfort of this is called Digestive Tonic and is a liquid as well.

Hope this helps

Melissa - posted on 10/15/2009

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My sister also said she had to give Morgan Milk of Magnesia mixed with water, apparently when mixed it works as a laxative, but isn't a stimulant and the body doesn't rely on it. Good luck!

(she wasn't a premie either)

Maurita - posted on 10/15/2009

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I don't know if this is the reason but it is definitely worth looking into. Don't jump to conlcusions until you read what the site talks about and how the different foods we eat can effect certain people in really bad ways. The site is www.helpforibs.com

If any of the stuff on there rings true to your sons symptoms than it can be a great help and you don't have to spend any money. Another thing to think about is that traditional medicine can often overlook food sensitivities and intolerances and only notice the full on allergies. Good to protect from something extremely serious but not good to help in the daily tummy troubles and health problems. A good naturopath can test for these sensitivities/intolerances and alot of healthcare insurance covers a certain amount of this type of medicinal help per year/per person. I'm not sure if these tests are suitable for babies but it is worth asking as it can make a big difference in digestive problems (as well as other problems).

Hope this helps and good luck.

[deleted account]

Jessica, my daughter had bowel problems starting at three. She ended up with a severe mega cholen at 6 yrs old. Had to be put on triple concentrated milk of magnesia three times a day for 7 months , and initially suppositories. I took her to Vanderbilt Children's Hospital in Nashville and they were wonderful. I did not get her food allergy tested but have always wondered about it. It's important to eat 25 grams of fiber a day and lots of water.

Vicky - posted on 10/14/2009

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My brother was only able to tolerate goats milk when he was young. Granted that was when medicine didnt try a pill for everything. My ex husband had issues for years, couldn't eat anything without getting stomach pains and bowel issues. He started taking aleo vera juice daily and no issues since. Ask your Dr. what he thinks.

Brenda - posted on 10/14/2009

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I have to agree with all of the people saying get him tested for Celiac's Disease. There is a new DNA test that can tell you if he has the genetic marker. If he doesn't have it then he can't have CD. Allthough he can still have a sensitivity to gluten. My daughter was brought to children's hospital and they tested only by doing the blood test. That was negative but like some instant miracle as soon as we cut out wheat her symptoms disapeared. I would let her have it once in a while and they came back. When she started to get stomache aches while eating wheat free I decided to ingore the negative result and go fully gluten free. Not a single stomache ache since then. There are many long terms affects if a person goes undiagnosed. I ended up with hypothyroidism and corn sensitivity that causes migraines. I am also lactose intolerant which can go hand in hand with CD. I was just told yesterday by a nutritionist that it is now 1 in 30 have CD. Most go undiagnosed.

In the mean time my newborn did not respond to gripe water but Colic Calm worked amazingly. It had to be that specific brand, it is 100% guaranteed and all natural. I hope some of our posts have helped and GOOD LUCK!

Melissa - posted on 10/14/2009

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My daughter has a slight milk allergy but only if she drinks straight milk she is fine to eat yogurt, pudding, or even cheese so we took her to the doctor and they said to put Acidophilus in her milk twice a day and see if that helped easy her stomach discomfort. She has now been on it for 6 months and is doing fine. When she was born they thought she had acid reflux but turned out she was having a reaction to the formula and had to be on a hypo allergenic formula(Nutramigen). Hope this helps.

Tasha - posted on 10/14/2009

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My daughter had so many problems with this when she was younger, her belly would stick right out, I had her to the Dr's seemed like all the time finally they sent us to specialist, they ran x-rays and all they thought she had something twisted or there was a blockage which nothing, they finally had to put her on special med they said that they would try to get her off of it in about a year so that time came and well she ended up being put back on it and then they tried again and it worked, she was also taking fiber pills, and some oil mix...I will be thinking about you I know how you feel, I hated seeing her in so much pain I would cry with her, I knew she was hurting!!!

Ashlee - posted on 10/14/2009

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This is a temporary help, have you tried Gripe Water? It's all natural, and given once or twice a day can severly aid in digestion and bowel movements. I think the best one is made by a company called Baby's Bliss. I buy it at Whole Foods, New Seasons, organic and natural stores. Some regular grocery stores carry it as well. It was the absolute best when my daughter had an array of stomach problems.

Natishia - posted on 10/14/2009

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I am going to have my grandson tested for Celiac. My friend just got diagnosed with it and she has no vitamin or iron stores left

[deleted account]

Jessica- Has he been tested for Celiac Disease, it is often misdiagnosed as other GI illness. My 4 year old has CD and was misdiagnosed for a year before I pushed for this test and it was positive.

[deleted account]

At 8 years old, and after 8 years of constant medical problems ranging from gastrointestinal to chronic sinus/ear infections, my son was just diagnosed with a dairy allergy and gluten sensitivity. After 20 years of gastro issues, I was also diagnosed with gluten sensitivity. Removing all gluten has worked wonders for us. My chiropractor recommended a stool test through an independent lab for the gluten testing (www.enterolab.com), which was non-invasive and relatively affordable.

Sarah - posted on 10/14/2009

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My son has some trouble with the bowel issue too. But we buy him yogurt and he loves it and it also helps him go regular. but I would ask the doctor if you could give him yogurt with the milk intolerance.I'm sure now they probably make yogurt that would be safe, but I would still ask his doctor. we give him yogurt and also try to give him more fiber and make sure he drinks enough. Hope this was some help to you. ya'll will be in our prayers. believe me we know how hard it can be watching your son hurt cause he can't use the bathroom. and what emotional draining it can cause.

Natishia - posted on 10/13/2009

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Quoting Jessica:

I've had him adjusted since I work with a chiropractor and I'm a massage therapist so I work on his stomach alot. neither really seem to give him much help but thanks for the input



I would try herbal teas they have worked for my grandchildren and myself.

Jessica - posted on 10/13/2009

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Yes he is bathed in prayer and were still hopeful that answers will be provided. Thanks for the prayers

User - posted on 10/13/2009

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There really isn,t not much to comfort him. My daughter had this an the thing that ever helped an I,m sure you do is lots of tlc & prayer...I pray your son be healed in the NAME OF JESUS.............BE BLESSED

Jessica - posted on 10/13/2009

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I've had him adjusted since I work with a chiropractor and I'm a massage therapist so I work on his stomach alot. neither really seem to give him much help but thanks for the input

Natishia - posted on 10/13/2009

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I am not sure what kind of Bowels problems your talking about. But I had severe constipation when I was a kid til I was 13 and my grandma took me to a Chirapractor. My hip was way out of adjustment. My mom could give me prune juice and it didnt help. My grandson is having some gas and cramp problems so we have been giving him Gripe Water. He is much happier. Chamomile, ginger and Fennel seem to help. Hope thi helps.

Christy - posted on 10/13/2009

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Just out of curiosity, how many of these children were preemies? I'm the mother of 2 preemies that have reflux and the older one (2 1/2) has food aversion and refuses to eat nearly everything. I've wondered if it was preemie related and if so is it possible it's caused from the "forced" feeds the recieved in the NICU to put on weight in a hurry.

Jessica - posted on 10/13/2009

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Thanks for the info if we don't get anywhere with these test we might have to contact childrens.

Melissa - posted on 10/13/2009

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My niece Morgan had milk and soy protein intolerance when she was a baby, ended up in children's hospital with a feeding tube for 6 months on Neocate. I know that Children's Hospital in Omaha helped my sister a lot, when her regular ped told her it was colic. Heidi might have more info?

Denise - posted on 10/13/2009

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Ugh, I have been there. My son is 10 and we still have no real answers. He is still off of dairy, but the problems persist. They are just less severe with no dairy. I am sure they have tried celiac, crohns, diverticulosis, etc. It is so frustrating. Good luck and I hope you get some answers. We never really did. It has gotten better as he has gotten older though.

Jessica - posted on 10/13/2009

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we did a milk and soy free diet for several weeks with no results. Also have done extensive blood work with nothing coming back positive. We just went through another round of tests today and are trying to avoid having his intestines biopsied which is what his gastro. specialist wants to do so I had our reg dr run some other test to check for certain disorders.

Denise - posted on 10/13/2009

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I would really see an allergist. The most common allergy with those symptoms is a dairy allergy. My son is allergic to dairy and had the same issues. He was not diagnosed until he was four. I am assuming they have had you take him off of dairy for three weeks to see if that helps? If not, I would try that. Good luck.

Colleen - posted on 10/13/2009

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I'm assuming he is completely dairy and soy free?? What is he drinking for milk/formula? Be very careful with the milk and soy - there is milk and soy hidden in a lot of foods and medicines. Have you seen an Allergist? My son is allergic to soy and dairy, which wasn't diagnosed until he was one year old. Please let me know if I can help in any way.

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