Vanessa - posted on 02/03/2014 ( no moms have responded yet )
At birth, my son Cedric was diagnosed with sickle cell anemia, a serious blood cell disease. Throughout the years my family and I have experienced some very difficult times enduring multiple doctors' visits, hospital stays and various surgeries. As we were going through these difficult times I realized that the only support we had was family. One day, I decided to start a nonprofit organization to serve as a support group for children with sickle cell anemia and their families. The mission of CSC Support Group 4 Kids is to provide advocacy, awareness, education, outreach, referrals, support, and aide in research to children diagnosed with sickle cell anemia.
Sickle cell disease occurs when a person inherits two sickle cell genes or a combination of one sickle cell gene plus any one of several other abnormal hemoglobin genes that affect the red blood cells. Sickle cell anemia is a hereditary condition that can cause severe headaches, backaches, stomach cramps, liver damage, spleen damage, gall stones, jaundice, kidney failure, painful joints, strokes, and for some death in early childhood or adulthood. Over 72,000 Americans suffer with sickle cell disease, and 5,000 of those Americans live in Georgia. Sickle cell disease is a chronic illness. A chronic illness is defined as a condition that last over one year, limits the person’s activities, and requires on-going treatment and health care maintenance. At the present, there is no cure for sickle cell disease. CSC Support Group 4 Kids is dedicated to helping find a cure, bringing awareness to our community, educating the public at large, and supporting children and their families with sickle cell anemia.
The well-being and welfare of children with sickle cell disease is our primary concern. Therefore, CSC Support Group 4 Kids offers a variety of services that encompass advocacy, awareness, education, outreach, referrals, support, and aide in research to children diagnosed with sickle cell anemia.
CSC Support Group 4 Kids public outreach and services includes information through health fairs, workshops, and seminars to the community; financial assistance with utility bills, transportation needs, school supplies to begin a successful school year; camps for children; hospital visitation through our volunteer liaison; support group meetings; and once a quarter per client visits that provides encouragement, and gift bags of toiletries.
Thank you for supporting this worthy cause, and our efforts to change the lives of children diagnosed with sickle cell anemia.