my son is 2 and has a heart defect from birth ...vsd and its location is between the aorta and pulmonary valve at the base of them both which they say is alittle higher risk .2 months ago the cardiologist did not recommend surgery wanted to watch him closely and said as long as he is stable they did not want to open him up because it was a high risk...also a seizure disorder and a low immune system with being very low weight for his age...he also has sllep apnea .we went back for follow up this week and they say his heart is doubled in size in 8 weeks and ttachycardia and irregular heart beat ...heart is back flowing blood into one side of his heart and now in congestive heart failure on lasix to pull some fluid off and immediate open heart surgery.im so worried due to how sick he is if he will pull through and im 31 weeks pregnant with another baby ..they said he will be at children's hospital for at least 6 to 8 weeks as im due with this other and feel like im about to break also have a 4 year old...anyone else have been through this kind of heart surgery with their own thAt could help me prepare...thankyou so much...im an emotional wreck

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