My son is being assessed for autism.

[deleted account] ( 17 moms have responded )

Hi everyone, my son is 2 1/2 and they are now going through the progress of diaognisin him. They said he probally be at the lower end of autism but I need some advice off other parents that have gone through it. I feel lyk I have the word on my shoulders n tryin keep it together for my son. Just quit college and placement because I can't do that aswell as look after him , college aren't bein supportive. He has started head butting things when angry. He attacks me some times. He is normally brillant until u tell him off then a switch turns on. He has a problem communicating n joinin in wiv others n I have tryed so hard to help him n asked loads of other people for advice.So now they say they think he has autism it makes me understand it's not my fault that I can't learn him more. I feel lonely , I would do anything for my little boy he is my world but I just wonder if it's cause my boyf wanted me to get rid of him thats why fate has given us a child that needs more help. Anyone who was gone through it or is please write bk thank u x

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JuLeah - posted on 10/20/2011

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Use care ... not a lot of details here, but most two yr olds head butt and struggle to communictae - many struggle to join socially - that all sounds like a typically developing two yr old

We LOVE labels here and slap em on at the first sign they might fit

Once the label is on, we stop looking for other reason that explain the behavior, and we often miss the real issue

If the child is not struggling with autism, but labled, he will take on more and more behaviors of austim becuase it will be expected, assumed .......

Not understanding why you'd need to stop attending college .... whatever day care you had him in ought to be able to handle him even if he is struggling with autism .... and there are early intervention day cares for kids with that label

But, nothing you have stated makes me think autism .... family docs don't usually know as much as they think and sometimes the 'experts' doing the evaluation see autism becuase that is all they are trained to see

His behaviors might be due to anything, including the fact that he is 2 1/2, so don't just accept and settle for this label

Iridescent - posted on 10/20/2011

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Another note - autism cannot be accurately diagnosed until approx 3 years old in most cases. There are symptoms prior, but they may simply be the result of developmental lags that are common with any child as they excel in another area. Prior to an autism diagnosis, as well, hearing needs to be thoroughly tested as deficits will mimic autism. The onset, for an autism diagnosis to apply, needs to be prior to 3 years of age. But the diagnosis is truly not accurate unless confirmed at later testing after all other causes are ruled out. Many doctors fail to do this.

http://www.nimh.nih.gov/health/publicati...
This states the earliest age a child can be diagnosed with autism is 18 months, and it's not always accurate. 3 years is the guideline.

Iridescent - posted on 10/20/2011

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I have two kids with autism. It IS a label. Every diagnosis is a label, and that label, to a doctor, means we can stop looking and need to treat this way. Because of that label, my oldest son's mitochondrial disease was missed until he was 11. That was stupidity on the doctor's part. Yes, he has autism as a result of it, but it's a secondary diagnosis, not a primary one, and if we never learned the cause his brain could continue to be damaged over and over and we wouldn't know why. Other symptoms were missed because of the Autism label.

My second autistic son's label has made doctors hesitate to find out what is truly wrong with him. It appears to be Cystic Fibrosis at this point, and he goes in for thorough testing in a bit over a week. Would your brain be able to develop if you couldn't absorb nutrients from food, or breathe well enough to do more activities than rock all day? That would look a lot like autism, right? These are reasons to wait on a label.

Jennifer - posted on 10/21/2011

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I have been studying Autism Spectrum Disorders and teaching students for a while now. The best thing you can do for you son is offer support and try to respect his needs. Offer him a routine that he can follow (pictures are good at this age). Try to avoid overstimulation and chaos as this can be triggers for him. If he has a routine and avoids overstimulation, the tantrums will become less frequent. As other moms have stated, early intervention is the best approach at a normal life! Get help wherever you can. IDEA should be backing you! (Individuals with Disabilities Education Act), best wishes!

Iridescent - posted on 10/20/2011

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http://www.elsevier.com/authored_subject...

"In a more recent study, Charman et al. (2005) diagnosed 26 children with autism at age 2
with the ADI-R and then followed them up at age 3 and 7. They concluded that
standardized assessments used at age 2 did not predict outcome at age 7, but assessments at
age 3 were predictive. These studies are among the few, and certainly among the best, to
establish the reliability and validity of early diagnosis. While the children in the study by
Stone et al. (1999) were 2, most were quite close to being 3 years of age. Also, the five-year
follow-up that was employed is a much more rigorous criterion versus a one year followup. Thus, Charman et al. (2005) conclusion that predictive validity is best when the child is
at least 3 years old appears to be the best bet as of this writing."

This is a relatively current study (2006), so certainly would apply to a child diagnosed at 1.5 years if he is 8 years old now, as that would put diagnosis in approx 2004. No newer studies that I could find show evidence of accurate testing prior to 3 years old at this time.

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Sharlene - posted on 10/20/2011

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Hi Rachel look I wish you the best for you and your boy what ever the oput come is there are services and interventions programs,programes and counciling support grupos for u and your husband.If you lived in Australia I could have connected you up with intervention programes and support groups for your son and yourself and yur husband look its not really that bad there special little angels ,if you ever want to chat message me please.All the best xxxxx

Sharlene - posted on 10/20/2011

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Ok well with james we got him test at 1.5 yrs old where the doctor did say childhood autsim.then again at 2.5 same thing, 3.5 yrs old autstim spetrum

Sharlene - posted on 10/20/2011

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Haemopilla B is a seroius blood disorder, They class that as a disablity

Sharlene - posted on 10/20/2011

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Sorry but I left out another that has haemopilla B do we label that as,Geeeee

Iridescent - posted on 10/20/2011

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Yes - it's labeled Hydrocephalus. That's why a thorough medical exam and tests are necessary prior to diagnosing something such as Autism.

I quoted studies, not opinions. And any diagnosis your child has is a label.

Sharlene - posted on 10/20/2011

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Okay well we all have our opinion onthis circle of mums but I dont like labeling a child because they have a disorder ,Plus I have another child that has symptoms of autsim but was diagnosed with Hydrocephaus wich is fluid on the brain and it affects there growth and delay devolpment,and spine so do you label that.

Sharlene - posted on 10/20/2011

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Sorry they also have a community of austic children on circle of mums and another 1 of special needs children as well

Sharlene - posted on 10/20/2011

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And dont blame yourself these things happen for a reason and probably join a support group of mothers that have autstic children all the best post me anytime you want

Sharlene - posted on 10/20/2011

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Hi I have a son thats 8 yrs old that has autsim spertrum whoick is on the boreder line and devolpment delayed,We got him diaognise at age 1.5 yrs ols ,Alot of intervention programs and support groups of autsim is out there, pre -school spcial aids also when he attends school age schools They have main stream school with special class for autstim,Check under community sevices they could offer more services for your child and darls if you want to talk anytime feel free and it does get better.Best of luck

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