My son just had 2nd Strabismus surgery and I am so worried for him

Gemma - posted on 05/09/2014 ( 5 moms have responded )

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My son is 3 days post surgery. This was 2nd op to correct esotropia, which to be honest I have no idea what that is exactly, doctor not been very explanatory. He had 1st op aged 2, he is now 8. He can just open right eye, which is very red but I expected this. However, he cannot seem to open right eye, which was the worse eye and when he tries harder to open it to me it still looks 'off'. I am so worried that he has gone through all this again for nothing. I really want him to have straight eyes as I don't want him to bullied, this world is hard enough for kids nowadays. Does anyone have experiences of surgery and what to expect? We had operation and then seem to get left to own devices. Luckily, apparently his eyesight is perfect, just the muscles but she said that he had no 3d vision due to squint. I really don't want him to have to go through this again. Any advice would be really appreciated. Thanks

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♫ Shawnn ♪♫♫ - posted on 05/09/2014

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Actually, Gemma, if a medical professional cannot explain to you, in layman's terms, the procedure, and be willing to answer any and all questions for you BEFORE you consent to the treatment, there's a problem.

Especially in Dubai, with all of the money that is there. It is your responsibility as the parent to be as fully informed as possible BEFORE consenting to treatment. My eldest has been through a plethora of medical procedures from the time he was 16 months old, and NEVER would I have consented to treatment without feeling that I fully understood what was going to happen, what the possible outcomes were, and how to handle any possible situations post operatively.

Dove is only stating what she knows about the condition, which coincides with what i've been told as well, that if the correction didn't take by the time he was four years old, it may not ever take. That being said, I was told that if the corrective procedure that my son endured when he was 16 may not take, and if so, they would do another corrective procedure, with a different process and different success ratio. One was more invasive, the other was less invasive. I was also told that if the first didn't take, the chances of the second taking were going to be reduced...but in my case, my son's recovery has been full.

Each situation, each doctor, and each patient is different. Only you, as the parent can know when you're comfortable with the level of explanation, and you should never consent to treatment without full understanding.

Now, to address your current concern: I'm certain that there's a 24 hour help line that you could access, which would be staffed by nurses in the field. They would be able to answer basic after care questions, which I agree, you need an answer to, in order to not risk causing more damage.

Good luck!

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Dove - posted on 05/10/2014

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I'm sorry you feel my comment was insensitive. As someone who's lived w/ the condition for 37 years I just commented what I know and what I've lived.

Gemma - posted on 05/09/2014

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Dove, slightly insensitive comment I think. I do understand the problem; his eyes were not seeing together and this can affect vision. I didn't understand estropia in detail as there are different types of 'squint'. Of course I have asked doctors, however I am an expat in Middle East and bit more complicated here. She just spouted off all types of medical terminology. Also as a mother you have to put your faith in the professional and that is what I have done as it is a reputable eye hospital here in Dubai. Unfortunately it is the weekend here so unable to call doctor for reassurance, hence me looking for support here. I was hoping for advise or experiences from people who have been through it just to put my mind at rest more than anything.
I was told at 2 he might have secondary op as they are still developing.
As for bullying, I am well versed on that subject as have 3 other children and of course as a parent would support him if that should be an issue. However was just trying to say that I do not want him to go through life worrying about his eyes. Sometimes people with the best intentions can't help but wonder what eye to look at, so to speak.
I am just a worried Mum at mo looking for answers.

Dove - posted on 05/09/2014

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Why are you allowing your child to be operated on when you don't even understand the problem and the process?

If this is the surgery I am thinking of I don't think there is much chance of it 'taking' at age 8... at least back when I was younger I was told if it's not dealt w/ by around 4 it will probably never stick. If it didn't work at 2 I would not have allowed my child to go through it again.

Do kids bully and not understand? Yes... some do. You just have to deal w/ the bullying and the emotional consequences for your child. Some kids are easily bothered by it and self conscious their whole lives... and some aren't.

Good luck!

♫ Shawnn ♪♫♫ - posted on 05/09/2014

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Esotropia is the 'squint' that he's experiencing. If you don't feel that you've been given satisfactory explanations, it is up to you to ask further questions until you feel you have received satisfactory information.

You should have received a follow up care sheet, as well as a follow up appointment, and on that sheet should be the number of the physician's office that you can call with questions.

I encourage you to do so! Good luck with everything.

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