my son suffers chestiness ans wheeziness, need help

Claire - posted on 10/07/2009 ( 33 moms have responded )

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my 13 month old son suffers from chestiness and wheeziness since he was born, i have been back and forth to doctors and there is nothing they will do, im an asthmatic and my partner has family members who are aswell, the doctors keep telling us that they can't diagnose asthma till he is at least 3 yrs of age, i know alot of people who av been in the same position and their children were diagnosed with asthma between the age of 3months-1year, is there any thing else i could do

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Denise - posted on 10/11/2009

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Don't know where you are from, but i went through some of the same things with my son and almost had to sue the last Dr. we had! My children go to Dr. Selvaraj, she is in Butler, Pa. I cried on my very first visit (he wasn't quite 2 yet and immured to antibiotics by then) because she diagnosed him on that visit. He was then put on a breathing machine and within a month we were at children's for him to have his tonsils,(they were 100% blocking) and adenoids (they were touching) out and tubes in his ears(ear infections were the cause for him to be immuned to antibiotics). My son also had sleep apnea due to all of this....scary thing for a mom to go through! Dr. Selvaraj is our God send! She is also the 5th Dr. we tried (all before 2 years of age). Don't give up and don't be afraid to keep trying different Dr's. One will eventually get it right. Good luck.

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Kimberly - posted on 10/15/2009

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They said the same thing about my son and I truly did not think that he would ever outgrow it. He actually did and now at 3 has not had any problems. I would ask about a nebuliser which will help and get the medicine deep into his lungs. My son had chest x-rays which showed all the crap in his lungs from having such a bad cough. I saw a billion doctors and a pediatrician because I was not satisfied with the answers they were giving me. They all told me the same thing but the pediatrician explained it a lot better. They said that they don't like to diagnose it until age 3 because their lungs aren't mature and some kids do outgrow it. As soon as you see signs of the cough coming on you need to act and get him on the meds before it becomes a problem. I was also told to wean them off the medicine when the cough is gone that way it's not gonna come back as fast. Taking him outside when he is having an attack with cool air might help his breathing. I would also suggest seeing an allergenist as sometimes allergies have a lot to do with it. Make sure he is tested for food and airborn allergies. Otherwise I was told it sucks and is stressful but there isn't much you can do and you just need to hope that he will outgrow it.

Margaret - posted on 10/15/2009

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Hi Claire! Everytime I read another story like yours I cry! The answer to your challenge is to address the food sensitivities both in your son and in your family. I am a pediatric nurse, a mom of 4 grown kids and a life coach with a passion for supporting families exactly like yours. Our children had similar issues years ago and I eliminated all their challenges by adjusting their diet. It is now my privilege to help other families do the same. If you go to my website at www.dynamicchoices.ca you can download a signs and symptoms of food sensitivity sheet, Fill it our both for your son and for yourself and see if you don't notice a trend. I have supported many, many moms to remove the offending food and to totally eliminate their child's asthma. Truthfully! It is certainly worth a try and in no way harms yours child. I offer free 1 hour consultations so if you would like to chat about your story, please email me at margaret@dynamicchoices.ca

I hope to hear from you as I have great empathy for your story.

Tonia - posted on 10/10/2009

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Yes, find another doctor my son was diagnose at the age of 4month....he was running high fever and whezzin...and i dont have asthma buy it run on his dad side...he needs to be on the machine

Yvonne - posted on 10/10/2009

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I would ask for the names of the dr's that your friends went to that diagnosed thier kids and go see 1 of them.Never give up when it comes to your childs health

[deleted account]

I was faced with the same predicament with my daughter. Come to find out she is an asthmatic. I confronted her pediatrician and strong requested a nebulizer. That is a life saver.

Claire - posted on 10/10/2009

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i dont use cleanings, i use a damp cloth to dust around the home. i hoover wen he is in bed etc

Cindy - posted on 10/10/2009

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They do not have to wait until hes 3. Do not let the Drs intimidate you, sometimes you have to fight for your child. We come across as hysterical moms who dont know anything! My grandson was dx when he was 1. It took until my son was 3 before someone finally listened to me. By that time the damage to his lungs was already done, due to untreated attacks. I saw soo many different Drs before I got the right one. I agree that you need someone who specializes in Peds. Keep going do not give up. The first and best Dr our children have is us moms. Good Luck!

Dona - posted on 10/10/2009

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I agree with Wendy. You don't want him diagnosed with a chronic illness. My sons are in the military, if he was diagnosed with Asthma when he was younger, it would have been difficult for him to go into the military. I believe most times when children are young they outgrow many things. Remember it is about 18 months or so before they develop their own immunity. My youngest has been healthy for years, but his first year of life he had 13 ear infections, 2 bouts of RSV, and Pneumonia... I lived at the pediatricians. By the time he hit 18 months he was good. I would leave well enough alone as long as he is recovering from episodes and being treated each time.

Shanna - posted on 10/10/2009

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Hopefully your doctor has discussed the affects of dairy on your systemn and how that affects asthma. Officially diagnosing a small child with asthma will only change what types of treatment he can recieve. Before you treat the asthma with a medicine foreign to his body, it's best to try and discover what is producing this wheeziness and eliminate that. Since you are in this "circle of moms" i'm assuming your somewhere close to me, there is a holistic pediatrician off of I-70 before you get to Frederick: Dr. Mirian Rothschild. She uses a tradtional holistic approach of balancing the body rather than medicating, but she is also a licenced pediatrician, so she uses regular western medicine when needed also....the perfect combination I think.

Natasha - posted on 10/10/2009

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all crap my son has allergies and had them since he was 4 months..He had an asthma attack after his maybe 3rd reaction to his formula.. Took him in they switched him to soy gave him a breathing treatment and a Nebulizer right then at 4 mths..Also try an humidifier in his room no vicks or meds in the water just warm mist.

User - posted on 10/10/2009

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You should definitely switch doctor's. Are you currently taking him to a pediatrician. If yes and they are telling you this then see a doctor who specializes in asthma. No one in my family had it except for one neice and my son was diagnosed at 3 months old. It didn't take long for me to see an episode coming on so I was quick to give him treatments. He also suffered numerous ear infections. At around 10 years old he was placed on an emergency inhaler and now at 16 yo he uses it very seldom. The doctors told us in the beginning he would outgrow it and the same thing happened to my niece around the same age. Good luck in finding someone who will diagnose what you already know is wrong.

Wendy - posted on 10/10/2009

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Doctors are reluctant to label as it can affect a child in later life with careers etc espec if the child grows out of it, i fought until my child was five to be diagnosed and he was labelled and has since grow out of it and its now causing career problems as unless youve been clear or never been labelled if you want a career in flying etc it can hinder if not destroy as we've now found out,I also have another one who is mild and controlled, I agree with some of the other posts its not about labelling its about treatment, as long as you get the treatment the child needs then take things one step at a time,If the doctor is failing to give treatment and this has been going on for some time,then you really need referral to a peadatrician at your local hospital, if the doctor wont refer you go to the accident and emergency dept when your child is really bad and say you dont know what else to do , they are obligated by law to treat him and that way he will see a paedatrician straight away via the emergency dept and this should then be followed up by hospital visit if there is a problem, good luck and dont give up, remember it took me five years! i do sometimes wish i hadnt got him labelled but in the long run im glad i did because if he did have bad attack or breathing difficulties and i wasnt there it be in his records to help him and it also aided in helping little one when he became very poorly and was seen by paedatrician and diagnosed immediatley, DO WHAT IS RIGHT FOR YOUR SON AND YOU THATS WHAT COUNTS THE MOST

Dona - posted on 10/10/2009

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Claire,

As long as he is being treated for episodes why diagnose him with asthma? My youngest son had symptoms when he was little, and the doctor told me that he may have exercise induced asthma. However, he outgrew it and now has no signs of asthma.



If you are not satified with your pediatrician then I would absolutely suggest you find another one.

Dhane' - posted on 10/08/2009

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I went through the same thing for months. Around the age of 8 months my daughter started to gt a really bad cough and it cam and went I wet to the doctors for abut three months trying to find out what is was they went through so many things before the finally diagnosed it as bronchitis I have asthma and her dad grandmother has asthma I told them that's what it was they wouldn't diagnose her with it until she stop breathing one night and I had to rush her to the emergcy room...At the age of 16 months they finally diagnosed her with asthma Some docs are shared to call it because it could be a multitude of things. If you do not get any help anytime soon as far as breathing treatments I would suggest to watch your child carefully to find out what triggers their burst...the weather triggers my daughters asthma then comes the cold then comes the asthma attack as soon as i see a cold coming on her I do my best to catch the cold which slows down her asthma also try a humidifier that helps to..Those things help minimize the attack for my daughter hopefully it can help you but keep going to the doctor and don't take no for an answer I don't want anything that happened to my daughter to happen to another child (shes okay now) so any time you see it coming take him to the doctor and let them see it for themselves.

Heather - posted on 10/08/2009

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My daughter was diagnosed with asthma practically right after she was born. She is almost 6 now and still takes her medicines. She did pulmicort and xopenex through a neubulizer and still uses it every once in a while. It made a world of difference. When she was 8 months old she was given singulair in a powder form that you just sprinkle over her food or put it in her drink. Now she takes the singulair pill. Hope this helps. If your doctor doesn't listen to your concerns for your child, go somewhere else. Obviously your child is not breathing comfortably or you wouldn't be going back in forth.

Richelle - posted on 10/08/2009

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Has he had it all the time or are the symptoms seasonal or after some kinds of meals? You could try going to an allergist. Try keeping a daily log detailing foods eaten, weather and air conditions, daily activities and number of occurrences of wheeziness. If you can find a pattern it will help you and the doctor determine what's going on.

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I have ventolin for my son.I also watch his diet and restrict fats, sugar and white bread and pasta.This past winter I've had him on multiviyamins, olive leaf extract and kids acidophilus tablets.It's made a huge difference.The only time he's needed his puffer is when he was outside too long on really windy cold days.

Melissa - posted on 10/08/2009

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You as a mother know in your gut what is going on. You also know the signs and symptoms of asthma. YOU are your child's advocate. I say change doctors and quickly.

Melissa - posted on 10/08/2009

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Yea I went through that with my son, Chris. It started at 3 months old. I had to keep rushing him to the ER at night when he had really bad attacks( his doctor at the time was hoping he would grow out of it)! After 2 weeks of rushing him to the Er because that was the only place that gave him treatment... I changed doctors and told the new doctor what was going on. Finally, I got the machine and medicine I needed for him. It really is the doctor. I think you might have to consider switching doctors. My husband has asthma and so does my brother, my duaghter.... it runs in the family!

Maria - posted on 10/08/2009

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Hi, Claire! You may have to get a second opinion from your health provider and see a respiratory specialist, specially since it runs in your family. They can run tests to find out what triggers his wheezing and shortness of breath and may even prescribe you medication for him to take. Ask him what options he has. Depending on where you live, you may have to move to a drier climate. Wet, cold climate tend to aggravate his situation. In the meantime, a humidifier in his room may help at nights when it gets cold.

Janet - posted on 10/08/2009

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Hi my son was diagnosed with asthma at 6 months. However this was 121/2 years ago. Doctors are very wary of diagnosing asthma at such a young. My son was getting chest infection after chest infection from the age of 6-8 weeks. I had him at the doctors every couple of weeks with the chest infections and he was at first given antibiotics and then eventually given stronger antibiotics which still dint help with the wheeziness. My son was also vomiting his milk back as well and we alll know that milk lies on the chest especially if you have a chest infection. My son was put on liquid ventolin which was not a good idea. He was put on an inhaler when he was between 1 and 11/2 years old and has been on inhalers since. Every couple of years he has his inhalers changed as he becomes immune to the effect of the inhalers he is on. He has an asthma check at least once a year. Docotrs are now only following the advice of the medical council regarding diagnosis of asthma. It may make a difference if you end up having your son rushed to hospital with breathing probs as we did with our son. Our son is also allergic to distaclor antibiotics. allergies and asthma can go hand in hand so can hayfever. have u tried steamy bathrooms to see if it helps with symtoms? if not keep going back and forth to the doctors they will listen in the end.

Betty - posted on 10/08/2009

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Hello, there are 3 things that make one ill, poor nutrition, environment, and stress... one can control their environment,, what type of cleaners do you use?

Susan - posted on 10/08/2009

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Claire....It is not true that they can't diagnose asthma until they are three. My daughter is 8 months old and has been having the same symptoms. Her pedi prescribed her breathing treatments at home (Albuterol or Xopenex) for her wheeziness and that has helped! She may not have full blow asthma, but they are asthma symptoms or can also be called "reactive airway disease". I'm a neonatal nurse so knew exactly what to ask for, but didn't have any trouble getting it from our pedi.

Sacora - posted on 10/08/2009

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I am a military wife, and I literally had to fight to get him seen. Try to get ahold of a pediatric pulmonologist. Or at the least a pulmonologist. My son was diagnosed at 6 months old and once on a medication regimine it made a world of difference. Get a second opinion and do some things at home that can help. Like allergen reducing products.

Tracy - posted on 10/08/2009

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Are you taking your son to pedatrition. If you aren't I would get him a different Dr. Some of those Dr are better at listening to parents and know more about kids then just a plan family Dr. You really need a Dr that deals with just children.

Tasha - posted on 10/08/2009

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Ask your doctor about getting meds to help with the problem. They normally can get u a nebulizer and inhailer to help with that. That should help him. I know my boys do neb treatments 2 a day

Joy - posted on 10/08/2009

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One of my triplets also had this problem. He is 4 now and we have gone over a year without using the breathing machine. They said he would grow out of it and never labeled it asthma, but when it was really bad we treated it like asthma with predinisone and albuterol and he would get better. The bad attacks were always in the fall. If your doctors aren't doing anything, I would try someone else, but as far as labeing it as asthma, they drew me diagrams explaining that their bronchial tubes are so small that any inflamation in them causes wheezing. The older they get and the bigger the bronchial tubes get the wheezing should go away and if it doesn't then it's asthma. Hang in there!

Therese - posted on 10/08/2009

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I'm not asthmatic or either is my childs dad but my son suffers with asthma also which was only really confirmed around when he turned 3, they first said it was rhinitis which is associted with ashtma, so i got rid of all his soft toys, no carpet or rugs in his room and limited the amount of toys on shelves cos i need to dust regulary and wipe the skirtings but it hepled as the dust was setting it off. He is now on peadiatric granules one sachet a night and nose spray to help his airwaves and an inhaler sometimes too, he can sleep all night now which he cud never do before, and hopefully will grow out of it hope this helps. Therese.

Nirit - posted on 10/08/2009

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Hi Clair, I'm asthmatic myself and so is my husband. my oldest (6y) has wheezing and wet coughs almost every fall. if it worsens I take her to the doctor that prescribes inhalation treatments with Budicort and sometimes Ventoline. I've got a home inhalation machine that I bought (with prescription) and it has a special mask to use on children, even when they are asleep. note that she has never been diagnosed as asthmatic, nor was I until a very late age.
I think that the actual diagnosis is not that relevant if the child gets the treatment he needs. I also think that too much inhalation treatments are not good and can cause the body to be dependent on these treatments rather than coping and healing itself, which I've seen happen, to myself and to my daughter.
The seasonal wheezing is very common and is not always a sign of asthma.
I would say - if your child is treated for the acute symptoms it is only best to postpone the "labeling" diagnosis.
Hope you'll all have a good healthy winter season :)

Jodi - posted on 10/07/2009

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Claire, it is difficult, because some doctors will and some won't. When my son was young, they wouldn't CALL it asthma, but called it bronchial asthma (go figure the different) and they treated him as if they would for asthma!! He was about 9 months old at the time. They prescribed ventolin for him, and it made a huge difference.



You need to go and see another doctor, and even if they can't diagnose him, they should treat him for the symptoms at the very least!!

Tracy - posted on 10/07/2009

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Is there anyway you could take your son to see one of the doctors that people you know who have children with asthma? If they found docs to do it, maybe you could see one of them. I hope you can find out soon. Good luck...

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