My son was on Concerta for a few months, then he started to rub and pull at his eyes all the time. His dr. wants to try Focalin XR. Anyone tried this? Has it helped?

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Madlyn - posted on 10/01/2012

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yes my son is 10yrs old and was on focolin 15mg then 20 then 2months ago they up it to 25. well we staeted seeing g more anxiety and fear and picking at the ears. so we just changed to concerta 18mg. and tomarrow will be the first day that he takes it. My Son doctor told me that Focolin is a very strong medication and the higher you go the more symptoms you see. It tends to bring out more anxiety for the child. So wish us luck with concerta and hope all ego's well....

Mandy - posted on 04/25/2012

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ADHD meds are unfortunately different for each child. You have to try a few before finding the right one. All three of my Children have ADHD so did myself and their Father. All three of them have different meds. but it is what works best for them

Kristie - posted on 04/24/2012

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Hi Nicole! Yes, I have heard of it but really don't know much about it. I will have to read about it. It does seem like there are usually more than one diagnosis. I will get online and look into it.
Have a great day.

Nicole - posted on 04/19/2012

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Kristie: I found the best thing to do with my daughter is to have her eat before she takes her medicine. The Focalin, if it affects him like it did my daughter will make him really nauseous if taken on an empty stomach... some ideas to try: an apple, a banana, a fruit and grain bar... etc. I don't know how you're used to feeding him, but if you guys go the cereal / milk route, sometimes the milk can act weird, (again, just our experience,) with the medicine. It isn't a problem, per se, it just makes 'em not want to eat even more, which leads to more nausea. Anything heavily grain-based seems to help with this. It really is important though, that they eat before taking the medicine.

Nicole - posted on 04/17/2012

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For years Focalin XR was a blessing for my family, especially my nine year old daughter who was diagnosed with ADHD in kindergarten, (but not medicated until 1st grade,) if your doctor recommends Focalin XR, my advice would be to give it a try and unless the side-effects are severe, (in which case, immediately inform your pediatrician,) give it an honest try. Focalin XR changed my daughter from a very hyper, extremely talkative, (to the point of not making sense,) unruly child into a child that could form understandable sentences, could sit still in her seat for increasing periods of time and who could finally "get it," when trying to master homework, reading and the social stuff at school & home. You don't mention how old your son is, but I'm assuming he's on the youngish side, (or recently diagnosed / medicated,) so understand, changing medications with ADHD is part 'n parcel. You'll have to work around to see what works, what works best and modify his medication as his body changes. My daughter now takes Vyvanese, (I think, don't have the bottle in front of me,) after the Focalin XR began to wear off before noon. She just hit the eighty pound marker, (which can bring the onset of puberty,) so a change in her medication was due. And we'll probably change it again, I'm sure as she grows older. Good luck!

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Kristie - posted on 10/24/2012

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Hello! It has been so long since I've logged in. Not that I haven't needed some advice, but just been real hectic. We did end up keeping our son(7yrs old) on the Focalin XR. He still pulls and rubs his eyes some, and now has started rubbing the corners of his mouth some too. I am wondering if this is due to anxiety. I know that the ADHD medication can make them more anxious (This happened to our daughter). My daughter is now on Focalin as well, but she only takes 1 1/2 tabs once a day (2.5mg tabs). She seems to be doing great on it, but she does take anxiety medication as well. I think that has made a difference too. She still has some anxiety in social situations or around new people, but she is doing so much better. We go back to her neurologist tomorrow to see what he thinks. She is also taking Depakote for her generlized epilepsy. They recently increased her dose and she isn't doing her eye fluttering and rolling!!! She might do it once or maybe twice a day if that. Before she did it pretty much all day long.

Madyln......how is your son doing on the Concerta????

Nicole - posted on 10/01/2012

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We've just started using the patch: Daytrana. It's the same type of medication as the Focalin XR, supposedly?, but it lasts longer. Good luck, Madlyn & et. al., it seems like finding the right medication for our wee ones will be a process we are going to go through repeatedly & with much trial and error.

Kristie - posted on 04/26/2012

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Hello! Yes, I do need to call the pediatrician. I call them often, but I guess that is what they are there for. I will call to see what we can do about the medications. I just dont know what is best for him yet. This is the 3rd medication we have tried. The Concerta worked, just had no appetite. He is little as well......right at 40lbs and he will be 7 in June. The Folcalin seems to help with the ADHD symptoms too just doesn't last as long.......he seems to start crashing at school between 12-1pm. He is taking 10mg. Not sure if he can take a little booster in the afternoon or not. The good thing is that he does want to eat when he comes home from school. We have to figure out if the Focalin is better since he eats more or if the Concerta which last longer and he seems to not crash is better. He also hasn't been sleeping good for the last 4 nights. I don't know if its due to the switch to Focalin and if it will get better.
Thanks for all your post and for listening. It helps a ton.

Nicole - posted on 04/25/2012

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Meredith & Kristie: Yeah, I think the dosage is dependent on weight, at least that is what we were noticing with my daughter. Once she hit the 80 pound marker, (the harbinger of puberty,) the Focalin started wearing off earlier & earlier.



Kristie: I would talk to your pediatrician about this, but I do think that anything we give them is going to cause some side-effects. It's never going to be %100. That said, since it is a quality of life issue, I don't mean to tell you to "give up" ... just that there's a possibility that he needs, (& his body needs,) more time to adjust to the medication.



Definitely get in touch with his pediatrician about the issues revolving around the medication wearing off so early in the day, though.

Meredith - posted on 04/25/2012

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My son was on Concerta and lost his appetite along with weight. He was already skinny to start with. He switched to Focalin XR 8 months ago and has had a lot of success with it and has gained his weight back. In fact his dose was just increased because he had a growth spurt and gained some more weight.

Kristie - posted on 04/25/2012

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Hi Nicole! Yes, it is a big price difference. He has been on the Focalin for about a week and he is still pulling at his eyes. We took him off all medication for 4 days before starting the Focalin XR. I am so confused on what to do for him. I do agree that it could be allergies, but irritated by the medication. When he started to rub and pull his eyes after stopping Concerta and starting Focalin it made me feel so bad for him. The Focalin is supposed to last at least 6hrs. He gets it around 8am, so I think it is wearing off before school is over. Not getting any complaints from the teacher. I will be sure to ask today when I go to volunteer to see what they think. I know this will be an ongoing process before we find what works for him and has little to no side effects.

Nicole - posted on 04/25/2012

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Kristie: Holy smokes, that is a huge price difference. I've heard of kids pulling on their eyelids when taking Concerta before... I wonder if there's a possibility that it lowers the immune system or causes the immune system to work in overdrive? (That's kind of what allergies are, your immune response getting crazy about something.) I would definitely seriously discuss it with your pediatrician, if you could / should move back to the Concerta or not. If the Focalin XR is wearing off too quickly that *is* an issue. Does it last through the school day, at least?

Kristie - posted on 04/25/2012

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Hello! I took my son to the eye dr yesterday. He said it was allergies.......he also said that his lower eyelids where all irriated and had little bumps all over. He gave us an rx for hiim to use 1x daily for at least a month. He said he may need it all summer. I hope this works. RX was expensive for a tiny tiny bottle ($55.00 with ins). I think we might try him back on the Concerta, not sue yet. The Focalin XR seems to wear off a lot sooner, but he does eat more!!! There is also a big price difference. The Concerta is about $10-$12.00 versus $88.00 for the Folcalin XR.

Nicole - posted on 04/20/2012

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Kristie: I don't know if you've heard of Oppositional Defiance Disorder, but it might be worth looking into in regards to your daughter. I don't have any experience with Depakote, maybe it would be best to make another post for it, I'd definitely mention her other medications, though, too, just in case someone has experience with them.

Kristie - posted on 04/19/2012

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Thanks again Nicole for the info. He is a very pickey eater, but I think we can do the fruit or even some whole grain bread. He does love cereal. I can try to have him eat it as a snack instead of eating it for breakfast. I appreciate the info. :-)
Another issue.....do you know anyone who has taken Depakote? I might have to post another question. My daughter(my son and her are twins) was diagnosed with generalized epilepsy and this is the 2nd medication for her. 1st one had bad side effects.....made her behavior a lot worse. She was on Concerta as well, and I think it made her more defiant as well. I know everyone response differently to all medications. She might be more sensative to some of he side effects.
Have a good night!

Kristie - posted on 04/19/2012

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OMG! Poor thing!!! That had to be awful for her( and you 2) I hope she is doing well without being on medication. I hope one day that will be my children.

Kristie - posted on 04/19/2012

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Thanks Nicole! My son will be 7 in June and weighs 40lbs. We just started the Focalin XR yesterday. So far so good. Of course the side effect of not wanting to eat is already happening. He didn't want any breakfast today. I know it will take time for this to get better. He was starting to eat on the Concerta, but of course I couldn't have him pulling at his eyes all the time. I am very hopeful that this will work for now. As you said when they grow and change their medication may have to change. Thanks again for your advice. I hope your daughter is doing well.

Shelley - posted on 04/17/2012

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My daughter pulled her eyelashes out on concerta. Must be a common side affect. I've never tried her on the other medicine so can't help you.

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