Ashley - posted on 05/08/2012 ( 5 moms have responded )
Marlee was born via emergency C-section at 32 week, due to delayed delivery (physician error) she went 4 minutes without oxygen and was trapped breach in my birth canal. Subsequently, she has been diagnosed with hemi CP, complex partial seizures, idioventricular arrhythmia (with v-tach), and strabismus Exotropia. We have been doing OT and PT since she was 10 days old. We also did aquatic therapy for 8 months. She has also been in speech therapy for 6 months. We have done Botox once, but she went into V-tach and almost died. We are debating doing Botox again but this time with a cardiologist present. Since her problems were caused by physician error, I feel a deep need to 'fix' her. I have been researching Stem Cell therapy at Duke and Georgia. I am wanting some advice from anyone who has tried it or is thinking about trying it. (We did not have the opportunity to save her cord blood because of everything that happened. So we would need to use cord blood from a bank) Any advice or information would be helpful and greatly appreciated!