Need Help

Rashda - posted on 06/02/2014 ( 1 mom has responded )

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hi, I am new to this circle. My son was born with brain malformation on left side. His seizures started when he was 18 months old. He is now 6 yrs old. His speech never developed. The doctor diagnosed him with Cortical Dysplasia Type II. He has all the symptoms i.e non verbal, impulsive, hyperactive, autism, global developmental delay, gross motor/fine motor difficulty. He had his brain surgery in 2011 and surgeon removed his broca area that was focal point of seizures. He was seizure free for 2 months and then it started again. His seizures are mostly night time or sleep triggered. He has tonic clonic and they last for 30 seconds to 1 minutes. Now doctors are saying that since his seizures are medicine resistant, he is due for another resection. He is currently on 5 med.Trileptol, Kepra, Frisium, Limictal, and Refunamid.
Pls recommend any good neurologist in USA who is specialist in CD or peaditric Epilipsy. We live in Sydney and I would like to have 2nd opinion before going for 2nd resection.
Pls help me.
thanks

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Eden - posted on 06/02/2014

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Not sure what the laws are in Sydney, but I understand that medical marijuana (not getting funny on a bong, but real medicine dosed specific to the child) can be extremely effective at reducing seizures in children. I have no personal experience with this, but know others who do. Maybe worth looking into? Best of luck and all my positive thoughts.

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