need help

Vanity - posted on 10/14/2015 ( 3 moms have responded )

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My daughter is 2 and is going through alot and finding a diagnosis for her is getting hard. She has multiple things going on but I didn't think to look at everything as one big picture until the other day when early Steps had mentioned genealogy. Her other doctors are so focused on autism as was I until the other day. Which she has not been diagnosed with that yet either she is seeing a neurologist that is not really willing to test her and I have been trying to find a psychologist that is going to take her insurance I am waiting for the Scott center to call me back they said they might be able to help with some of their funding to cover her initial screening She has pulmonary stenosis, lazy eyes bilateral mitosis and one of her eyes floats outward and inward sometimes which her eye doctor hasn't fully diagnose that, she also has had reoccurring ear infections that have led her to get tubes in her ears, she does not speak very well knows very very few words, she seems to understand some things and seems curious to learn but it almost seems like it's very hard for her to grasp what she is learning which leads to her tempers she gets very violent with other children and me and other adults throws herself on the ground almost like the typical two year old tantrum but seems worse she does not like water on her face or hair panics when water gets on her hair or face does not like to be touched a lot and a lot of times it's very hard to get her dressed or change her diaper she's a fighter but can be loving at times if that makes any sense her hair also is not growing properly it is extremely thin and brittle almost looking like she has plugs or to pay look her motor skills seem to be fine and when early Steps tested her she did pretty good a little low but nothing big she babbles her lips a lot almost like making bird sounds she does that randomly throughout the day and sometimes she spaces out is there any mothers out there with similar situation or has a child that is diagnosed with the same symptoms or any advice?

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Suzanne - posted on 10/14/2015

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You are so welcome . My daughter Had labor from 6-7 month on they gave her meds to stop the symptoms thinking that the due date was wrong despite our telling them to the contrary. the real problem turned out to be the cord was shriveling up and causing oxygen anoxia. The baby was born a month late with meconium stained fluid. had developmental delays, asperghers,speech delays,knee subluxation and slowed processing. Today she has a beautiful 2 yr old,suffers from handicaps but is a sweetheart and lives with me!

Vanity - posted on 10/14/2015

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She was born at 36 weeks and I had complications during the pregnancy as being constantly in and out of labor but her birth seem to be normal she did have jaundice real bad after birth and at the moment he sees a ent for her ears and currently has tubes in her ears an early Steps has a speech therapist setup for her which is great and she is currently seeing an ophthalmologist for her eyes and as far as he can tell he says her vision is not impaired at the moment but I will definitely mention about the thyroid and pituitary gland issues to her doctor and see if he he wants to refer her to a endocinologist thank you so much for your help

Suzanne - posted on 10/14/2015

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My greatgranddaughter is 28 months ,I am the primary caretaker and lives with me and her mom.I am a retired R.N. I would want a consult with an endocrinologist: for thyroid and pituitary imbalences. Ear infections are common but could cause hearing and delayed speech issues, if there were any birth issues ,ie. trauma causing developmental delays such as prematurity, oxygen deprivation,. A speech therapist could be helpful.It was helpful for my grandaughter who had congenital defects affecting her speech.Eye issues may impair her vision . The combination of hearing ,vision problems as well as the age of 2 when autonomy is the developmental task may cause frustration for her to achieve independent skills therefore the tantrums could erupt more easily.I would get her ears treated,have eyes examined with plan.and see the endocrine specialst to start coordinate with the pediatrician.

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