Ashley - posted on 12/19/2010 ( 9 moms have responded )
my son has had lung difficulties since 2 months old. he was in and out of the hospital and they couldnt figure out what was wrong till he was 6 moths old and we finally figured out he was aspirating so the placed a ng tube in his nose. we were doing pretty good until he started pulling it out 3-4 times a day so we tried taking it out seeing how he would do. he was doing good for about a month and then started having to go back in the hospital and wouldnt drink anything so they decided to place a g-button in him this past august. we have been trying to eat for about 3 months now and go to therapy weekly but my son doesnt want anything to do with adult food or any food for that matter. the only thing he eats is snacks like yogurt melts and fruit snacks we tried thickened liquids but he started geting a cough so his dr. kept trying differnt meds. and even took out his adnoids seeing if that would help. He has now had a cough for 3 months now constant and been on 4 different antibiotics and 2 rounds of steroids and nothing is working. His dr. diagnosed him again with aspiration pnemonia and said he can eat or drink anything by mouth.They said he has to be on pedisure so he can get enough fiber and nutrients and its about $12 a day and insurance doesnt pay for it. We currently have 8 dr. at childrens hospital and none of them can figure it out and are currently waiting to hear back form childrens hospital in denver. If anybody has any suggestions as to what this could be or how to help us please let me know i would greatly appreciate it and i hate to see my baby constantly sick thank goodness hes always happy!!