Need Help With Headstart IEP

Tashia - posted on 05/06/2012 ( 4 moms have responded )

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I'm new to all of this so bear with me. My son is now 4 I've been telling his dr since he was 2 that something was different with him. She referred him to First Steps program but since he was almost 3 (the cutoff age) they couldnt help. He started headstart in August & his teacher also sensed it. He was having a lot of problems at school so his dr referred him to Cincinnati Childrens Hospital Behavioral Unit He didnt get an appointment until March they have a long waiting list. The dr at CCH said he was developmentally delayed & ADHD but they didnt know the cause & referred him for a neuropsychological evaluation, OT, ST, behavioral counseling, genetic testing & Fragile X test. Last week he was diagnosed with SPD. We began trying to get an IEP in place back in September due to developmental delays, I found out today that I could've requested it & they would've had to evaluated him within 60 days:( But the teacher who has been really great with my son said we had to go through so many tiers of trying different ways to improve his behavior before they would evaluate him for an IEP (I dont know if she was misinformed) so we did that & last week she said those didnt help so I'll need to sign some forms & the school board will do their own evaluations & if they feel its needed they'll have a meeting with me to discuss the IEP. Sorry for the long post i guess i have a few questions 1.does anyone else have an iep for their child in headstart & whats included in it 2. after they do their evaluations what happens
3. with school going out for summer this week will they wait until August to do evaluations?

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User - posted on 05/09/2012

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Iridescent Moonbeams - His headstart teacher & I discussed the IEP but I never requested it in writing which i will do now that I know once this takes place they have to do it within 60 days. If only I had known that then. He began getting OT & chiropractic services at our local hospital last month, hopefully it'll help. I'm going to request the IEP & if they don't cooperate I'm definitely looking into an advocate. Thanks for your help, its greatly appreciated:)

User - posted on 05/09/2012

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Thanks Tena I appreciate the help. We're in KY & we have a 0-3 program called First Steps. The pediatrician referred my son to this program but he was so close to 3 they couldn't help him, hes now 4. I've been researching the KY laws & reading everything i can about IEP's its helped a lot & I'll definitely check those links out. Thank you!

Iridescent - posted on 05/07/2012

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I'm sorry, but you were blown off.

You can call the school district and request an evaluation for an IEP (it sounds like you've done this).

He can receive HeadStart in the meantime. You can also request clinic based therapy services. The only additional things the school IEP will give you are therapy at school plus preschool, and if needed, adaptations in school to help him succeed. Since it is so late in the year, the school evaluation may not happen until this fall when school restarts.

Call your state's Department of Education and ask for help. If you made the request for an IEP evaluation in writing previously, you can file a complaint that they didn't do it - it doesn't matter how close to 3 he was. They are bound by federal law to at least evaluate. You can also search for child advocacy services to help you. PACER (PACER.org) is national, but can't help much outside of Minnesota other than to guide you to local services.

Tee - posted on 05/07/2012

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I have never dealt with an IEP at that age group but have had IFSP's for my younger 2 (both were preemies) and did get an IEP for my oldest when he was in elementary school (he's ADHD / Bi-Polar) you might want to contact First Steps to see if they can refer you to someone to help. Here we have Help Me Grow and they didn't have a problem with evaluating my middle son even though he was close to 3 when it was done. My daughter was 5 months when hers was done. I don't know if you have access to Help Me Grow as I am in Cleveland.

Also you might want to try http://www.childfindidea.org/ and http://www.nectac.org/default.asp to see what could be done or if they could point you in the right direction. You will also need to read up as the teachers might be misinformed and you need to be the biggest advocate for your son getting the services and methods of learning that he needs.

Good luck to you.

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