Neutrapiena concerns...

Suzanne - posted on 09/07/2015 ( no moms have responded yet )

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Hi I have a now 9mos old little z he was diagnosed with ITP and neutrapiena at 2mos old after 19episodes of apnea during anytime awake or while asleep. His numbers were as low as 400 anc and 450platelets recently his platelets have been normal after a transfusion (350,000) but his Anc count has gone up and down his medical insurance refuses to do any genetic tests so now we are playing the wait and see what happens game...
His numbers were normal two months ago but he has suffered so much illness while number is high when they are low dr said he is with out symptom or illness....
Recently his numbers were 2800 and little z had three stomach flus, three no reason high temperature, two viral infections this last one has lasted two weeks with low grade fever , nose runny lack of wanting to eat , and he has been fussy....
Has anyone else experience where baby is so HOT to touch on head or chest but rest of body is cool..when this happens dr said I never heard of this just keep eye on it....when he feels hot his temp is usually 96.5-97.3....

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