Shawn - posted on 01/02/2014 ( no moms have responded yet )
Hello moms... I had a preemie (1 lb 1oz) a few months back... My first and only child. EJ is my miracle baby. I love him to pieces. He got a tracheotomy in Sept and finally was able to come home for the first time October 31 ( yes he was in a costume). Since he's been home, there's been a couple of scares... We returned back to the hospital twice because the local hospital in the antelope valley isn't familiar with his "complications" so he gets a free helicopter ride to children's hospital at a moments notices when we call 911. I've never experience anything like this before... God has helped me a great deal. My question to you all is this... How do you deal with love ones who don't get it or understand the reason for the Trach? During the Holidays I found myself exhausted trying to explain it to family members from both sides... The topic of the day. When is he going to get off that machine? Try hearing that all day...