MF - posted on 03/31/2015 ( no moms have responded yet )




I'm 26 and I was diagnosed with NF1 when I was in the third grade. I was very mildly affected but had severe migraines often. I have several Cafe Au Lait Spots and small fibromas on some parts of my body. My husband and I found out we are pregnant and I am about 7-8 weeks now. I had recently met with a genetics doctor to discuss my chances of passing along the NF1 gene, the tests revealed I am positive for the gene and have a 50/50 change of passing it along. Any other moms with NF1 that have passed it along? Or know the chances of how severe it could be with me being on the 'mild' spectrum?

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