User - posted on 08/26/2012 ( 3 moms have responded )
my niece was diagnosed with medulloblastoma when she was 12 yrs old. She had radiation followed by chemotherapy. She completed her chemo, but a follow up MRI showed that a 'spot' on her spinal images was actually another tumor. They started her on a high dose of chemo, and were waiting to retrieve some of her own stem cells so that they can give it back to her after she completed treatment. She almost died during her first course, which was the lowest one. Her most recent MRI showed two more rumors in her spine, and they are saying there's nothing left to do for her. She's only 15. They just keep saying 'she's going to die from this cancer' which is the most devastating thing to hear about a child. I keep going online, hoping to find answers, but I keep coming up empty handed. Is there anyone else going thru something similar to this, and if so, what options have you been given?