Noonan Syndrome

Erica - posted on 01/11/2014 ( 1 mom has responded )

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I am looking for someone, somewhere to help point me in the right direction, how to deal with this very new diagnosis and refer me to a really good support group. All the information I've found are redundant. I know the specifics of this syndrome but can't seem to find one professional to tell me what to do now!!! I'm very frustrated and concerned. Thank you.

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Rebekah - posted on 01/12/2014

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Hi Erica. My daughter is 2 and has Noonan Syndrome. I am also on the board of directors for the Noonan Syndrome Foundation and would love to help you. Please contact me at rebekah@teamnoonan.org. Please feel free to check out out website as well... www.teamnoonan.org. We also have a great support group on Facebook as well... https://www.facebook.com/groups/Noonansyndromefoundation/

Look forward to hearing from you soon.


Rebekah

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