other kids with cranial stenosis

Ann - posted on 05/03/2010 ( 2 moms have responded )

96

11

4

My daughter had her cranial stenosis repaired a year ago. At 22 months 19 corrected, It has refused and they are talking surgery again. Just looking to see if anyone out there has had to make this decision as well.

2 Comments

View replies by

Ann - posted on 03/25/2011

96

11

4

Amber - We did do the 2nd surgery. She is doing really well. Her head is extremely bumpy this time but there were many pieces of the skull reused this time with lots of screws. I'm hoping that as the screws disolve the bumps won't be as pronounced. But unless you are touching her I don't think the average person notices them. We have our follow up in April. Slightly nervous since it was our final check up after the first one that led to another surgery. Here's to hoping my concerns will be behind me soon.

Amber - posted on 03/24/2011

1

0

1

I know this post is a bit late, but I had to reply....I hope you did in fact decide to have another surgery. My sons neurosurgeon said to be prepared that it might refuse, and it would have to be redone....he said it was rare to have to do it again, but it could happen.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms