Possible Cystic Fibrosis-

Chelsea - posted on 10/24/2013 ( 3 moms have responded )

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My daughter is 2. She is beautiful, happy and so much fun! Since she was born she constantly coughs, she has had pneumonia several times, croup, sinus infections and been on antibiotics and breathing treatments more times than I can keep up with . Her doctors (ped,pulm and allergist) have mumbled something about possible cystic fibrosis here and there, and i have always thought it was extreme and never researched or put much thought into it because she has asthma and that explains everything, right? wrong? Next tuesday we are doing the sweat test for CF. Everywhere I have read says they are screened in the heel prick as new borns so I have been thinking the chances are that much less likely that she has it... wrong again. The state of texas doesnt test for CF in the new born screen. Nothing has been diagnosed, so I should keep my worry at bay, but as a mom I am freaking out a little bit. Any advise, anything similar that turned our alright? Anything similar that didnt?

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Chelsea - posted on 11/07/2013

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Yes. She was negative. Her sweat cloride levels were less than 10. I am incredibly thankful that she does have it, however the cause of her ongoing illnesses still is not resolved.

Stepheinie - posted on 10/24/2013

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Well you need to talk to god about you worries and pray do much he will help.

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