Preeclampsia & HELLP Mommies Community - Come Join!

[deleted account] ( 14 moms have responded )

I'm trying to figure out how to let mom's know that this group is out there now! Any advice on how to well...advertise? Thanks all!

MOST HELPFUL POSTS

Christina - posted on 04/26/2012

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Melissa, you should have the doctors do blood tests to check your cortisol levels and thyroid. If either of those levels are really off, then it could be a hormonal imbalance in your body that you could get treatment on. I wouldn't wait too long though and push the doctors to do the blood work. I had to fight for my doctors to get the blood work done for me. I found out later that I had cushings syndrome. Luckily, the tumor was on my left adrenal gland (not my pituatary gland) and they took the tumor and the left gland out. I was put on steroids for a year to supplement that side until the right adrenal gland could function on it's own. It was a crazy time, but I am healthy now....lost all the weight from the imbalance in my body. I had a second pregnancy that was sooo healthy and great. My advice to you is that you know your body and if something doesn't feel right then you NEED to get an answer. Don't let drs or anybody else tell you that you are ok if you don't feel like you are. You need to have piecof mind. Good luck!

[deleted account]

Oh my gosh! I am so sorry! I am going to a Rheumtologist (sp?) to rule out RA soon. I don't have lupus, but I've been diagnosed with probable MS. I don't think its that though...But for sure think it is something autoimmune. Its been a long hall trying to get diagnosed...

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Melissa - posted on 04/26/2012

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I got preeclampsia at 17( Im 18 now) with my daughter( first baby) and it was horrible!! I went for my check up and everything seemed fine until the nurse checked my blood pressure and it was 175( I don't remember the bottom number). I was admitted to the hospital. They checked my urine and found that I had a count of 17,000 protein in it. They put me on magnesium and I was on bed rest. They put a catheter in, too. I was monitored and my blood pressure was taken every hour. They tried to keep me pregnant for as long as they could, and they injected me with steroids to help her lungs, and soon I had to have an emergency c-section. Layla was 1 pound and 04 ounces at 30cm (11.8 inches). I had her at 26 weeks and got preeclampsia at 24 weeks. I was in the hospital for a week and a half. She was breathing on her own and she already had her eyes open. Right now she is 3 pounds and 06 ounces and still in the NICU. Im completely okay now but before I have more kids I have to go get blood work done to see why I got preeclampsia so early. I didn't have any symptoms and i felt fine, however i did get really puffy and gained about 30 lbs( im better now). I only had my husband to comfort me cus none of my family knew i was pregnant. I didn't even know til i was 5 months!

Gina - posted on 01/24/2009

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Hi Ladies, i have lupus and when i was pregnant with my son, i developed pre-eclampsia, so the doctors orderd me off work, and the day before my las day at work i got a wicked headache, i went to the pharmacy, checked my blood pressure and it was 210/90, my husband rushed me to the hospital i stayed for 1 week and then they released me. a couple of days later, same thing, so i was admitted at 7 months on complete bed rest in the hospital. now, becuase i have lupus nephritis, the pre-eclampsia was mimiking my lupus symptoms so at 35 weeks they induced me, and i gave birth to my little blessing (mind you, the delivery was a breeze compared to the actual pregnancy. eventhough mikey was almost 6 weeks early(he spent no time in nicu), we had to stay in the hospital cause my pressure was soo high. they finally released us and now, he just turned 2 and is amazing, my hubby and i have an itch to go for number 2 but im soo scared!!!

Dixie - posted on 01/23/2009

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Hey ladies!  I had preeclampsia twice...with my first son I was 18 when he was born...I just happened to have a dr appt that day otherwise we would have died.  Went in and was sent straight to the hospital.  He was born 5 hours later, they couldn't control my bp and the rest of the numbers were off the charts.  With my second son (16 years later) they were aware of my history and kept me medicated from about 20 weeks on.  I was on progesterone from the moment If igured out I was pregnant (about 2 weeks),  terabutaline for contractions from 16 weeks, keflex for bladder infections (4 before 16 weeks), never had one before or one since, lexapro for blood pressure (I guess to keep me happy) and methaldopa for my bp.  Stirling was born 6 weeks early, he broke my water one morning so I went to the hospital, they tested me again for preeclampsia and the numbers were once again off the charts and they took me back for another emergency c-section 20 minutes after getting my results back.  My husband barely made it there in time from his national guard drill 4 hours away.  It is a crazy disease!!!  It almost killed us the first time....my oldest son has ADHD and my youngest has delayed meylination, sensory integration dysfunction, hypotonia and terrible acid refulx.  Does anyone else who had this have children with disabilities?  I would love to know what caused my littlest one's delayed meylination.......I often think it might have been the meds, but without them I couldn't have carried him!!  or maybe it had something to do with the preeclampsia...who knows??

Cheryl - posted on 01/23/2009

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Tara, I have autoimunine desease also, I have a positive ANA level and the one doc said that is a good sign for that, its also a marker for Lupus.  That is why we had to have it ruled out.  When I was around 22 I lost all my hair on my body and was told it was caused by my body attacking the pigment in my hair.  I also have to watch what meds I take because my immune system also attacked my liver for a short period.  I get anything and everything every ones else get and its usually two times worse too.

[deleted account]

That is exactly why I started the Preeclampsia & HELLP community. When I was pregnant with my son, because I didn't know what was going on (not educated enough or aware of this) and my doctors were fickle, I nearly died. While we don't know what causes preeclampsia, we can at  least try to educate pregnant women to recognize the signs and symptoms. I think bedrest much earlier on in my pregnancy would have helped me as I was still working the day before I went into the hospital. Please feel free to join the community too since you have personal experience with this! Thanks ladies! :o)

Maggie - posted on 01/22/2009

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That's very good that you guys are sharing these things.  I know a woman who had pre-eclempsia and her daughter was born 1 month premature but she doesn't want people to know and I find that stupid.  I respectfully never brought it up in conversations with her.  But I figured it out because I know the signs and the procedures.  My mother had 5 pregnancies with 4 pre-eclempsia episodes.  2 pre-eclempsia episodes did develop into full eclempsia.  Unfortunately she lost both babies during the process.  It was either her or the babies.  My older brother and I are just lucky to be alive because back then technologie and medicine weren't so advanced especially in the Caribbean.  When you put the word out there; you help other mummies as well as yourselves.  And that's commendable.



 



Maggie



http://www.marykay.com/maghackett

Cheryl - posted on 01/22/2009

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I haven't been formally diagnosed with RA, but I have all the symptoms of it.  Plus I have family history too.  They gave me the diagnosis of fibra myajlia or how ever you spell it lol.  I just thankful they ruled out Lupis.  The last thing I have is a curvature of my spine, its sooo bad my hip is fused.  It wasn't fun during my pregnancy because Phil decided he like to be sideways the whole time up till 3 weeks before I was due, which was a week before he was born to turn, he laid across my pelvis and hips and I could barely walk.

[deleted account]

Oh! And Cheryl? I'm in a lot of the same groups as you, including the chronic pain one...what do you have you poor dear? :o(

Cheryl - posted on 01/22/2009

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I agree with Christina, sharing is important.  I had Preeeclampsia, and at first the doc wasn't to worried because I didn't have a high BP.  In fact it was low all through the pregnancy.  I went in for a routine ob appointment and it spiked and the doc sent me to the hospital to have me check.  It was still above normal, but not as high and the docs in labor and delivery was like no big deal go home the baby is good and doesn't seem in distress.  I was worried, I also had gestational diabetes and really didn't want to have anything bad happen.  I spent the weekend wondering what was going to happen Monday morning when I went in to get other test results.  Monday came, I saw a different doc than my normal person and she was like well its not to high and your not due yet so we wait but I will ask the specialist once we get the urine test back what they think, but I think its ok.  Two hours later she called me and said pack your bag, the test came back high and the GD doc wants you here to induce.  I had a healthy 7 lb baby boy 2 years ago about two weeks early.  He is fine and well I ready to pull my hair out now lol.  I would also post the groups name on the community board if its not there now.

[deleted account]

No way?! For the past year I've seen 16 doctors trying to get diagnosed with Cushings! I have high ACTH but only random tests show high cortisol!  That is crazy! I've been diagnosed with cyclical cushings but there isn't much doctors will do for me with that. You certainly don't look like you have cushings at all!!! I'd love to hear your story! I started a post in my new community for sharing stories...shared part of mine! :o)

Christina - posted on 01/22/2009

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I think just letting people share their experiences is a good start. It might show that they are not the only ones who have experienced Preeclampsia. I have! My son is 16 months old now but I had HELLP, preeclampsia, high blood pressure, gestational diabetes while pregnant and only to find out 6 months after his birth (which was 1month premature) I was diagnosed with Cushings Syndrome.

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