Preemie, Both or Micro Preemie

Andrea - posted on 02/10/2010 ( 29 moms have responded )

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My daughter was born at 36 weeks (preemie) She had a brith defect called Gastroschisis (insides outside Belly) She was 3lbs 8oz (which i was told is micro preemie) Cause it is the "normal" size of a 32 to 33 weeker.. So I keep being told that she is a preemie/micro preemie... She stoped growing when I went into labor at 32 weeks.. Then at 36 weeks she only had 3cm of fluid around her.. Anyone else hear of this before???? Any help from any mom would be great.. Thank you all so much.. Just kind of wondering as she is only just now sitting up.. Therpy put her 2 to 3.5 months behind but her doctors told me she should only be about a month behind.. Thank you all again..

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Yudelka - posted on 11/29/2013

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Waoooo. My baby was born at 25 weeks and was 1.7.
She's now 5 month but actually 7 weeks.

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Never heard the term 'micro preemie' but am wondering if I had one. My daughter was born at 29 weeks, 2 lbs 6.4 oz, 19 inches. She'll be 9 in a few weeks and is doing great with absolutely NO physical, cognitive or developmental issues and the biggest heart imaginable. God made her exactly what he wanted her to be, and I'm grateful. As others posted earlier, don't believe everything you hear. My neonatologist said she'd probably be born silent due to underdeveloped lungs - and she came out screaming! We were told she may need a ventilator, but she never did. We were warned she may need a blood transfusion, so my husband donated blood for her - and it's probably still sitting at the hospital somewhere if it hasn't been used, because she never needed it.

Bottom line: whatever term they give your baby - "preemie/micro" - the BEST term for your baby is your little gift from God. Be encouraged!!!

Cassy - posted on 03/01/2010

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I dont know about the preemie Micro preemie thing, but I wish you the best of luck with your daughter. A good friend of mine was born with the same defect. Just think of how cool it will be for your daughter to say she doesnt have a belly button. :) Good news in this bit of bad news though. My friend was told that he would only live until he was 20 or 21 years old because of the strain and stress that puts on a person. He is now 23. There is hope and I hope your little girl is going to be ok. I just wanted to put your mind at ease for something. Good luck!

Mary - posted on 03/01/2010

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My son was born a premmie at 32 weeks. He weighed 4 lbs and 11 oz. and was 19 inches long. He grew a little at a time and when he hit a growth spurt he really grew. He is a little learning disabled but he is an honor roll student in the 8th grade now and 15 yrs old and the pride and joy of my life. So don't believe everything you hear, just take care and watch them grow and they will at there speed. Good luck and God Bless.

Sarah - posted on 03/01/2010

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Hi me and my husband found out I was pregnant at 25+3 weeks. Our son was born ten days later at 26+6 weeks gestation. His weight was 2lb 1oz at birth and he had a heart murmer, cronic lung disease. He spent 11 weeks in SCBU and every time we saw a health visitor or a specialist, they would say "you do know he's not six months old, he's only 3 months old" but if they were to see him today, they would definately say he'd done well at "catching up". He's been diagnosed with Cerebral Palsy, only mild, but he's got all the other problems that come with it.

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Susan - posted on 02/28/2010

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My name is Susan Herington and 21 years ago I had a premmie she weighed 2lbs 10 ozs and she had surgery at 2 weeks old for a intestional blockage she was sick kids for 4 weeks and then back to the hospital where she was born for 4 weeks, yes everything your baby does count back how premmie she was for exmaple if she is sitting up at 1 year old and was 2 months premature count back 8 weeks that was how sick kids told me to do it. My daughter is now 21 and flourishing and she had a baby 20 months ago who was also a premmie dominik was 2 months premature and weighed 4lbs 11 ozs and you would never know it now he is healthy and growing like a weed. Susan Herrington.

Sue - posted on 02/27/2010

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My son was born ten weeks early, at 29 weeks, 6 days. He stopped growing at 26 weeks due to my preeclampsia. He was 2 lbs 8 oz. He was behind for years. They told me he would catch up by three years, but it was more like five years. He had gross and fine motor delays, and speech delays and communication issues, and ADHD. But in generaly things with him are ok. We had a lot of worry and physical therapy, etc. We still go to social skills classes, etc. I don't know if it had to do with his prematurity or if he would have had some of these problems anyway, but all you can do is do your homework and keep yourself informed. And do what you have to do in order to be able to say to yourself at night that you did everything you could to help your kid out. It can be stressful and hard, but I guarantee that it is worth it.

Diane - posted on 02/25/2010

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My sister had her daughter at 23 weeks and had many issues going on as you can imagine after birth (brain bleeds etc). I believe she was 1 pound 3 oz. She ended up staying in hospital for nine months. Today she is perfect and graduating from high school and planning on going to Duke this coming fall. She is very highly intelligent and the major problem (and she had many operations), were her eyes. She has to wear glasses most the time. She also is petite and other than that she did very well. She will be eighteen next month. They have made a lot of progress since she was born. And to think the doctors wanted to take her off life support. Thank goodness my sister and her husband said NO.

Carmel - posted on 02/25/2010

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My son was born at 25 1/2 weeks, he weighed 1lb 9oz. It was touch and go for the first few weeks. We are very lucky that he survived at all! When he was four months old he weighed about 5 lbs. He had delays. He was almost 2 when he walked, he didn't utter a word until he was 3. He is now 6 and in Kindergarten. He has caught up! Even though he is older than most of the kids in his class he has integrated perfectly. Having a micro preemie is a very stressful, worrying and trying experience. The hardest thing is having to answer all of the questions people ask when they have delays and the what if's that you ask yourself. Just remember that there is light at the end of the tunnel, this is not a terminal or prolonged diagnosis. Your child will catch up and sooner than you think will be living a normal life. Good things will come from this experience and you will look back on it as a not only a trying but a learning and fulfilling time in your life.

Andrea - posted on 02/24/2010

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I would like to thank everyone for taking the time to help me.. I have come up with she is a baby and that she doesn't need a lable as in life every one is quick to hand them out so why should she have to start life with one... Other then the lable of Gastroschisis, as I am sure that is a lable she will in time have to explain on her own to friends.. Over all she is healthy and growing and that to me is the most imporant thing in life.. Happy, Healthy and Growing... But thank you all SO much you were all very helpful..

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I don't know anything about preemies. My son was born 32 years ago. Full term but as the doctor said as he was born " on my God we have one with his chitterlings hanging out". His small intestines were on the outside. He weighted 9 lb 8 oz at birth. He was flown by helicopter at 4 hours old to Columbus, GA. He had surgery as soon as they got to the hospital, 2nd surgery the next week and 3rd surgery the next week. He almost died after the last surgery do to medical cutdown but, he made it thru as did "all" the babies that night (a miracle happened) in the NICU. He has no belly button, just a scar. He has always known about his birth problems. He still has his pictures from the NICU. He has never had any problems except one time he got constipated (impacktion) and had to spend 2 nights in the hospital when he was about 6 or 7 years old. He was slower than his sister in doing things but then made up for it. Just treat her normal and you don't have to explaine anything to anyone about her size or development.

Cynthia - posted on 02/15/2010

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My Granddaughter Paryss (Paris) was born with a similiar condition, her intestine and liver were outside her belly, she was in the hospital for her first 6 months. She was full term 6 lbs,3 ozs when she was born. She is now 5 years old. She is still small for her age, she is wearing a 3T. She is hearing impaired because she had to go on the ECKO machine for 2 weeks, but she survived. She recently had a Cochlear implant put in to help her hearing, and has begun to talk. She still needs to have surgery because her liver needs to be put back into its correct place, it is now on the front of her belly. She has not gained enough weight for surgery, and the doctor's feel as long as she is not having problems with her belly she is fine.

Ann Marie - posted on 02/15/2010

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charlie born at 31 weeks was in special care until he was 37 weeks he now year old he 2 months behind development they say but he get there in his own time

Jennifer - posted on 02/13/2010

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Just want to add to what is being said- what a great Mom you are!!! You are so right on when it comes to conflicting info... Unfortunately, all the 'experts' don't agree with each other on many medical issues. My daughter (who is now 9yrs. old) was supposedly born at 25 weeks 2 days. My calculation (based on conception date- which I think is more accurate, as I was there, and the Docs. weren't, LOL!) is that she was actually 23 weeks 4 days. She was 1 lb, 9 oz, and her eyes were fused shut at birth. She was in the NICU for 3 months, on ventilators pretty much until release date, & came home on oxygen. Due to ROP issues, she has retinal problems in her right eye. Only functional in her left eye. Despite these medical concerns (along with allergies & asthma), she is doing extremely well developmentally, academically, & socially. I finally got to the point where I listened to what all the 'experts' told me, researched what they said, and then went with my gut instincts... which, so far, have always been right. As the Mom, YOU know best what is 'normal', not the other people. They simply go by statistics, which your daughter is not. I will keep you all in my prayers! Sounds to me like you are AWESOME:-D

Andrea - posted on 02/12/2010

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A little look inside...See that is kind of what happened with my little girl she went from 3lb 8oz to 2lb 12oz or so that is why i guess that maybe therpy is thinking she is micro preemie. I guess I am just confused.. I to have done the so much research that my head was spinning when i went into have my daughter.. I knew what she was in for as we found out when i was 12 weeks prego with her.. We had to have CVS testing done. 40+ ultrasounds, non-stress test, high risk doctor, "normal" doctor and her surgery team.. Also i was really really really sick with her.. (chicken pox, flu, all day sickness, got sick every night at the same time, was in and out with perterm labor.. Was nothing like i thought it would be..As i know far to well every pergo is very different.. Mine were night and day.. My sons was awsome...) I had gotten every book i could find on Gastroschisis looked on the web.. I thank you so much for the help and advice.. We do now know and understand that her belly does cause her pain from time to time, to go along with the Reflux, extra gas, pooping issues and all the other things.. She is to me A "NORMAL" baby in every way, shape and size.. I guess that is what i need to rememeber in the long run.. She was given to me for a reason. I really shouldn't matter if she was preemie, micro preemie.. Just that she is hear to tell her story as she grows with her so cute odd belly button (which i just love) looks like a larger outtie belly button.. Thank you Erinn.. Any information you would like to share i am willing to take.. Heck I may have missed something when doing my own research.. Thank you again..

Andrea - posted on 02/11/2010

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Thank you Liz you have been very helpful.. As i am not looking for a label for my daughter, I really dislike labels.. Just really needed to understand why we are having the to different opinions on the subject.. I have just looked at my daughter as a baby.. If some one ask why she is smaller then i will explain but otherwise i am just trying to let her live as normal life as she can.. I know she still has a fight to over come as she grows.. As she doesn't have a "normal" belly button so i am sure when it comes time to explain it all to her it will take its toll on her. I am just going to raise her to be PROUD of who she is and how she looks... Thank you so much again Liz

Liz - posted on 02/11/2010

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Both my girls were labeled micro premies by ALL of their doctors, without us asking about it or asking for the label. Micro Premie also is dependant on various bodily functions, and organ function. There are several classifications to become a micro premie -you only need to hit on to make the label.
Lorelai was 2'8 and Madeline was 3'7.

Liz - posted on 02/11/2010

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mmm I would maybe talk to other sets of doctors and tell them to either get their numbers straight or your getting off the train. Thats so counter-productive to keep you guessing as to whom is right. That is so awesome she is feeding herself already... my girls arent yet and they are one. So there you go - she might not be 2.5 - 3 months behind.



I put a little more stock in what the developmental therapist says, (for my girls) as that is all she does all day, where the pediatrictian is your standard kid doc. All she/he sees is semi normal kids and may not be aware of what a micro prem or prem has to go through.



And clarify everything, if your hearing two different things from your health care professionals that its doesnt do anyone any good.



Just going to warn you, you need to be very aggressive with doctors. Because of my age (22),I've found that I really need to fight to be heard.... they now call me the Baracouda - but my i never leave the docs office unsure of what i heard, and i never doubt the care that my kids need at home..



GO ANDREA- Your going to do great.



To settle the debate on micro's - they do set it on age BUT if a baby is small enough, they will still call them micros. My girls didnt qualify age wise, but they totally hit the mark weight wise... i think you can safely say she was a micro... most NICU docs and nurses would agree...

Andrea - posted on 02/10/2010

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She is seeing therpy 3 times a week and i work with her all the time.. Her older brother also plays with her all the time.. I as just wondering if any other mom had people trying to tell them 2 different things.. I don't think nor have i ever thought of her as a Micro Preemie.. To me she has a rough start and that was the cause of her small size.. (that n i was very very ill with her prego.) To me she is just a preemie.. As my son who was born at 37 weeks and was only 6lbs even.. I am only 5'3" and was 130 when i started with both kids.. So i am small framed, which they took in to account for there small size.. My son to was behind and i was never worried with him as i know all kids will do things in there own time.. I try not to compare her to other babies in her age group but some times it is hard when i see my friends little ones walking, talking, crawling, rolling all the baby things, How ever my daughter is able to feed her self with a spoon already (shocking i know) Has been on a sippy cup for 6 months (she is 10 months) ( 9 months adjusted age) so she was 4months old (3 months adjusted) So i know she is ahead in some things.. I just confused to why THERPY tells me she is 2 to 3.5 months behind and her DOCTORS tell me she is only a month behind.. I feel she is right on for herself.. As i my self was behing in motor skills.. I just don't want people asking the thousands of question they ask all time.. (ie.. when we meet with family member whos kids are a week older of even a few weeks younger then her) I am just confused.. I know she is a wonderful gift to me and our family.. As is any child to there family.. Thank you for the help.. We have been working with THERPY for a little over a month now.. Thank you all for the kind words..

Leanne - posted on 02/10/2010

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dont know about the micro preemie, but my daughter was also born at 36 weeks and she too had problems, for her she had apnea spells (stop breathing) and was incubated for 3 weeks. She was 6 lbs 8 oz when she was born, luckily. She did do things later than my other children, like crawling, rolling over, walking talking etc. But too much later. Where we found the problem was in school socially she was behind the other kids so in grade 3 we held her back and from then on she soared! she is now 17 and getting ready to enter University to be a pediatric nurse. You should look for support groups and ask your doctor about getting help from a therapist, I am sorry I dont remember what kind of therapist but mine would come to our house every week for about 10 months and work with my daughter from the child development centre ( thats what we call it here anyway) Your health nurse would be a great person to ask about this kind of help. Miracles do happen and you will see that in a year or 2 your child will be right along playing with all the others. Good luck to you guys :)

Michelle - posted on 02/10/2010

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If she was born if abdominal problems like you say then of course she will face delays. But know that she will get there and you will help her do it. My second son was very ill as a baby with a bowel problem and he had to have 3 surgeries when he was 7 months old. Due to the surgeries and the problems he wasn't able to hold himself sitting until 8 and a half months and he didn't learn to roll over sitting up and crawling until he was almost 11 months. I was told he might not walk until around a year and a half and that he would need physical therapy to get there. At 14 he learned to walk. He is now16 1/2 months and he is unstoppable. Children are amazing and they will do things when THEY are ready no matter what others say we as moms just have to be there when they need us. It is hard but it will work out.

User - posted on 02/10/2010

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I had 2 preemies, 1 at 31 weeks, 1 at 32 weeks. It was a tough couple of years with both, but now they are doing very well. Try not to compare (I know how hard this is!). Your daughter is a gift & time will fly by. If you feel she is behind, I know GA has a program called Babies Can't Wait, not sure where you are, but ask your pediatrician for advice. Hope it helps!

Andrea - posted on 02/10/2010

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I am not trying to say that she is a Micro Preemie.. To me she has and is just a preemie who had a heck of a fight to get everything put back inside her belly (as most of her insides were all outside) and working like it should.. To me she is growing and doing things in her own time.. I am just thankful for every day she is here with us.. Thank you for the kind words.. I hope that everyone little one are doing good.. Take care..

Liz - posted on 02/10/2010

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I had two twin micro preemies, both of whom had a limited amount of fluid when they were born (34 wks, but they were the size of 30 weekers) - my best advice now that the girls are one and ive survived the year is this - ignore what the doctors say about development.. your daughter will grow how she grows - if you watch the growth charts you are going to drive yourself nuts. I spend the last year clocking their growth at home, and with their dietition. I spend a whole year wasting time, clocking growth, what they ate, how much, and when. That time I could have spent playing with my kids. Make sure shes eating a balanced diet that works with her disease, and leave it at that.

I'm really serious on this, every doc appointment I heard about how the girls were behind in growth and how this could affect them developmentally, and for their one year appointment I found out that they were a least a month or two behind in growth but that they were a month ahead developmentally.

Your daughter will get there, I'm not saying its going to be easy, because it's not. But you MOM know best, you know your daughter better then anyone else.. While she may be sitting up late, I'm sure you can think of a few things that she is doing that put her on course or even ahead a bit.

If it comes out that she is further behind then she should be - then you take the information that your given and make whatever decision you need to make.

Your going to do great - Your asking questions of other Mom's which is always a major first step. Keep it up, your and your daughter are going to be fine!!

Ayla - posted on 02/10/2010

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My Son was born on the day that i went 36 weeks pregnant. He is considered a preemie but when nurses and things ask me if he was a prem babie I tell them that he was born at 36 weeks which makes him a week prem. ( because anything after 37 weeks is considered full term.) He had some minor growth problems during the pregnancy. ( I had regular ultrasounds to measure his growth and one week he would be too small and then the next week he would be the right size and then back to small again.) They even changed my estimated due date a few times because of his size, but I was sure of when I concived so they worked it out from that. He also had low flid around him but it wasn't much of a concern. He was born a little small but not too bad. He was just under 6 pounds, wich compeared to yours sounds pretty good lol.. He is also a little bit behind. He will be three in July and still isn't toilet trained and is only just starting to speak. It's so strange because he could crawl at 6 months lol. He is short and skinny but he is very hyperactive. Maybe your daughter being behind has more to do with the birth defect she has. But I must say I woulsn't worry too much because having being born with something like that I would expect her to be a bit behind. She is a very strong little girl and she will get there eventually!!!

Nicole - posted on 02/10/2010

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My son was considered to be a micro-preemie because he was born at 26 weeks gestation and was only 1lb 8oz. So we fell into that category. Preemie usually isnt by birth weight as far as I understood it was more by gestational age. It sounds to me that your daughter was a low birth weight baby especially if she was in utero until 36 weeks. Did you have her at 32 weeks or was your labor stopped, and you had her at 36 weeks?



As for developmental milestones dont let anyone tell you what your child should and shouldnt be doing! Your baby is going to be doing what she needs to do at her own pace and you are going to be there to encourage her. If you have a good team with your doctor that is the only person that needs to be telling you where she should be. I had too many people tell me that my son was never going to be doing anything nearly on time and hes 13 months, 20lbs, 28 inches and learning to walk!



Your daughter is a blessing and what she has already gone through in her short life is so sad but shows that she is a tough kiddo. Keep your head up, shes going to be fine, and shes going to be caught up to every one else by the time shes 2! You just have to love and encourage. Do lots of physical activities with her, work on tummy time, those kinds of things!!



Good luck, and I hope this helped you!

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