pregnancy related heart failure

[deleted account] ( 3 moms have responded )

i was diagnosed with peri-partum cardiomyopathy last year. it is purely related to pregnancy. it's a rare condition,and i wondered are there any mums out there who also have this ? it is very scary,when first diagnosed,and doctors have told me i cannot have any more babies. there is a professor at hull university who is funding research into this condition,as hospitals aren't really aware of it and they don't know why it occurs. i wasn't diagnosed by the hospital i gave birth in,although i had the symptoms..it was a nightmare. i am lucky to be here to love my baby boy. i would be interested also,as they said that carribean women are more suseptical to suffering it.

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[deleted account]

Quoting Melanie:

I was also diagnosed with cardiomyopathy after my second child in May of 2008. I've done alot of reading on it and it can reverse itself - meaning your heart can go back to normal. Mine has been steadily improving this last year. I'm keeping a positive attitude that it will go away completely. I also read the statistics on women that have had children after being diagnosed and those whoses heart had returned to normal had a 85-95% survival rate.



thanx for replying melanie. yes,you're right the heart can return to normal. i am in contact with other women around the country who are also like us. one contact i made took 3to4 years to recover.i too am slowly recovering with help of medication. also i regularly see a heart nurse at the hospital,and have regular echo-cardiograms etc... a positive attitude is the only way to go. it's really hard when you first get diagnosed. i was given a 30% chance of getting better at one stage,and told i'd be a good candidate for a heart transplant !!!!!!!!how scary is that? i'm optimistic as i am much better than i was last year.keep in touch.we can keep each other updated.take care.

Melanie - posted on 06/14/2009

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I was also diagnosed with cardiomyopathy after my second child in May of 2008. I've done alot of reading on it and it can reverse itself - meaning your heart can go back to normal. Mine has been steadily improving this last year. I'm keeping a positive attitude that it will go away completely. I also read the statistics on women that have had children after being diagnosed and those whoses heart had returned to normal had a 85-95% survival rate.

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[deleted account]

I had my 5 th baby in may 08 and diagnosed w ith heart failure i am slowly getting better but am strugling with my weight

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