Pregnancy turmoil with cf and downs.

Katie - posted on 01/26/2013 ( 2 moms have responded )

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I had a miscarriage last year in July. I got pregnant the November after only to have spotting and find out I needed to be put on progesterone. After that they did the routine blood work I didn't think anything of it. My doctor called me and told me I carry cystic fibrosis, and I was shocked no one in my family know of any history of this. So then my husband was tested the assured us he would most likely not carry. It is very rare apparently. Low and behold he was a carrier. We went on to have a cvs test they told me everything went perfectly. As soon as I walked thought my door I started pouring blood. The next day they checked the baby it was fine but my placenta was still bleeding. It stopped 3 days later . I went back to work that night I began to bleed again. I needed a week more of work off. 3 days after the 2 bleed started it began to clot off and stop. That is the day I got a call with my results. The doctor informed me its bad news. My first thought was oh no my child has cystic fibrosis. She went on to inform me my child does not have cystic fibrosis. We had been blind sided with downs syndrome. What cruel world is this what a mean trick the world has played on me. Has this happened to anyone else?

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Katie - posted on 01/26/2013

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Yes but they can't asses the severity of the condition until birth. Also it's more then physical features and delayed development. There are many health issues that may require hospitalization, surgeries or result in early death. Is that really fair straight out of th womb onto the operating table.

Michelle - posted on 01/26/2013

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Down Syndrome kids are gorgeous. They are so loving. It does depend on the severity as well though.

I would suggest that you find a DS group in your area and get to know the parents and ask for advice.

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