Progressive Myoclonic Epilepsy/heterotopia/zonisimide

Crystal - posted on 08/17/2015 ( 3 moms have responded )

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My son was diagnosed with grey matter heterotopia and genetic testing showed he has progressive Myoclonic epilepsy. He is only 4 and is on zonisimide and I find that his meds only work for a few months at a time and are increased. His seizures are absent. Any one have PME? Anyone take zonisimide?

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