radial dysplasia

Monika - posted on 03/19/2014 ( no moms have responded yet )

2

0

0

Hi. I'm from a small country Slovenia. So excuse my bad english. Anyway, my doughter will be one on april 1st and she was born with radial dysplasia. She has a missing thumb on her left hand and her ulna is very short. This is quite unknow disorder in our coutry, because, like I said, we are very small.. so you can imagine how little information they gave us about it. I'm wondering... does any of you decided for an operation? I do not agree with an operation when they use a big toe or index finger to make a thumb. But I would agree with an operation where they extend the ulna. I wish her hand would look at least the same as her right hand.. Please give me some advice. Thank you very much, Monika

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms