Cheryl - posted on 05/01/2012 ( 1 mom has responded )
Hi, I have a beautiful 8 month old daughter. She has a partial 7q trisomy. She has cleft palate, reflux and is developmentally delayed. Since she was 2 months old I have had her in PT. She gets tube fed and recently started ST and OT. It is a comfort to see so many parents who also have children with delays but who are strong and continue to do the best for their children. It can be so discouraging when it seems that everyone around you has perfect typical babies. It makes me feel so isolated. I would love it if I could find someone with a similar diagnosis as my baby.