Seizure or not? Please Help!!!!! :-W

Daniela Toloza - posted on 05/21/2014 ( 4 moms have responded )

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I have recently noticed my 2,5 year old son is doing weird movements with his arms plus a weird face, several times a day, I think it could be partial seizure. Yesterday we went to Pediatrician office to talk about this, and she gave us a referral to a neurologist, but they dont have a space until july 2nd and truth is I can not wait so long...
After the Pediatrician appointment he had a long absence (around 30 seconds I think) what makes me feel even more worried. I made some videos during these episodes and I would like to know if someone with experience in this matter could watch them to tell me if is something to worry about or not.
I just need to know if I should treat it as an emergency or I can wait until july.

Tahnk you.

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Guest - posted on 05/22/2014

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The ER is a good start, just a couple of things to keep in mind.
Some ER's with very high patient loads will simply make sure the patient is "stable" (not in need of immediate care for survival) before discharging them. Also, some smaller hospitals may not have access to the technology or staffing that you need for more specialized diagnostic tests. If the hospital you choose is one of these, it will be a waste of time. They will simply do what your pediatrician did--make sure he is fine for now and refer you for testing.
University hospitals, private hospitals, and hospitals with lower patient loads (but who still have access to the testing technology you will need), will usually try to do some further diagnostic testing before discharging the patient.
Also keep in mind that diagnostic testing, even when done as part of an ER visit, is not usually covered under the same service as the ER visit. It will be billed separately, meaning it is probably still covered, but you will pay additional co-pays (or if only a percentage of the bill is covered, you will receive separate bills for the ER services and the diagnostic services. If Anesthesia is used, that will be separate as well. And if the testing requires the use of non-staff doctors (these doctors do not work FOR the hospital, but have rights to work within them. Most hospitals do not employ specialists) their services will be billed as a separate expense as well.

Daniela Toloza - posted on 05/21/2014

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Thank you for the ideas... It is so hard to see him during these episodes. I checked with my insurance and a visit to the ER is covered by them, so I think that's what I will do next time... I just need to know certainly if something is wrong with him. Thank you again.

Guest - posted on 05/21/2014

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July 2nd is only 7 weeks from now, which is actually a very short wait time for a neurologist (there is a shortage, and most world wide are booked at least 3 months in advance).
Generally speaking, MOST (definitely not all) neurological seizure conditions will not cause permanent damage or deteriorate beyond treatment options in 6 weeks. As long as he is continuing to breath, and his heart continues to function during the episodes, you are probably fine to wait the 6 weeks. That said, several times a day is not something to scoff at. If you notice ANY significant changes (such as significantly longer or more frequent episodes, or changes in his behavior during episodes), you should call your doctor and the neurologist immediately.

If you are very concerned, and feel you cannot wait, you have a couple of options.
You can call the neurologist office and ask them to review the video you have. Your insurance may not cover that, and as far as I know, none of the government sponsored health systems do, but the fee shouldn't be too steep since you will not actually be going in for an appointment at that time, and if they see anything that might worsen if treatment is delayed, you might get put on a wait list to be seen earlier if someone cancels. The catch is you have to be ready to go in as soon as they call you.
Another option is to take him to the ER during one of the episodes. If there are notes in his medical file, you MIGHT be able to get a more extensive workup in the ER (depending on the hospital--you can call first and ask what their treatment will entail if you bring your child during one of these episodes). It will still not be a complete work up, and you'll still have to see the neurologist, but again, if they find anything that might worsen quickly they might see you sooner.
Lastly, it is a long shot, but you could call all of the neurologists in your state and see if anyone has an earlier opening. Keep in mind that without the referral from your pediatrician, your insurance or government health plan might not cover the cost of that visit.

So, you can probably wait, but if you chose not to, those are some options.

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