seizures

Kimberly - posted on 03/28/2011 ( 24 moms have responded )

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when my child has a seizure it seems like she gets more clumsy with each one has anyone else have problems with this

24 Comments

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Jon - posted on 04/01/2011

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We have seen some people deal with seizures that the doctors can't explain either and I'm sure we could connect you to them to see what they have found helpful. I know some have gotten over them and would be willing to share their journey. jsmillerco@juno.com

Katie - posted on 04/01/2011

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hmmmm for some reason my fb can't find ur email..lol. Up to u..u have mine if u need a chat.

Kimberly - posted on 04/01/2011

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lol i feel the same way my email address is kimberlypollock21@yahoo.com if you would like to talk

Katie - posted on 04/01/2011

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stupid laptop..lol, my apoligies for u having to interperate. Sweety u aren't alone, and the docs make me wanna hit them regularly.

Katie - posted on 04/01/2011

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hows the rest of her development going hun?
It's up to u babe..would u rather do this privately?...fb email is kathleen.hamilton@live.com.au. I may not be able to fix everythign but IO can head u int eh right direction..just rather it not be a public thing. xo

Shannintipton - posted on 04/01/2011

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Hi Kimberly,
Are you talking with some one from COM now
shannin tipton

Kimberly - posted on 04/01/2011

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my little girl is 19 months old she hasnt had one in about a month but still clumsy this is all new to me i dont know who to turn to or who to call her doctor just shoves it off like its nothing cause she dont have them regularly

Ruby - posted on 03/31/2011

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if they wont see you sooner take her to another hospital look on the internet for childrens hospitals because you really have a case on your hand she needs a doctor asap im not putting bad luck on you but waiting on them its crazy they dont know what you are going through so look for other hospitals and i wish you luck and i hope she gets well.

Katie - posted on 03/31/2011

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Ahhhh honey..I am queen of seizures..lol. My son startede having seizures at birth and went undiagnosed for a year untill a grand mal, the fight to this day still continues in order to control them.

Bloody hospitals take their time and while I understand theat they don't want to put her on meds yet..it's still anoying.

Best thing to do is get in to see ur pead..request that they push things along..if he won't..go to another pead, ur bubba needs to be seen asap. U should take in a diary of when, the type of siezure, how she appears before and after, and get as much video footage as u can..then FORCE the docs to listen, u will have to learn to be very willfull and pushy. I can't stress enough the fact that she needs to be seen and have all this organised early, once ur in..ur set, u can have access to the neuros 24/7 with any questions. how old is ur little girl?

back to the question at hand..yeah my little boy used to have days where he could sit and others where he just fell all the time, so u will find that is part of it untill the seizures are under control. let me know if u want to talk to me privately on fb. good luck

Emily - posted on 03/31/2011

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I would contact the doctor and let him know about the clumsiness. Not sure if that's normal, but if it's a change, he should know about it.

Kimberly - posted on 03/31/2011

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her doctor doesnt want to put her on anything till she sees a specalist which i think is crazy see she dont have them all the time its whenever she hits her head she goes into one i know that doesnt make any since but thats how it happens

Emily - posted on 03/31/2011

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Did the doctor put her on medication? While you're waiting to see the specialist, maybe the pediatrician can start her on something. My son had seizures starting at age 10 months. They got progressively worse, and his primary doctor put him on Phenobarb until we could get more tests done. Thankfully that did help him. We were told that the seizures were more damaging to the brain than the medication, but then he had as many as 30 in a day so maybe it is a different scenario than your child. But regardless, I'd see if she can see someone else in the meantime.

Shannintipton - posted on 03/31/2011

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Hi Kimberly, Again I am not a Dr., but I do have a head injury. I do know that little tiny brains are very re-zeal-yant (Sorry I cant spell). That is why they are able to learn so much at such a young age. If one part of the brain is damaged it rewires itself to learn in another area. Like a detour en route to the store lets say. If they catch it now and are able to control the seizures, I doubt you will have any long lasting or permanent damage. Good luck{:+)
shannin tipton

Kimberly - posted on 03/31/2011

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thank you im just hoping like crazy the seizures has not messed with her brain and that she is just clumsy maybe she will grow out of it

Shannintipton - posted on 03/31/2011

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Hi Kimberly, I am really sorry you are going through this. If you could somehow record her seizures they may take you a little more seriously. (But actually I dont know if that would get them to see you sooner) It upsets me that they cant take you sooner. She is obviously suffering as are you. Again I am sorry and wish you BOTH the best of luck. {:+)
shannin tipton

Kimberly - posted on 03/31/2011

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we are suppose to take her to vanderbilt hospital in april we keep calling them to see if they have anything closer openings and they dont we have took her to her doctor and they dont know why she is having them all her test results come back fine she has had three in all that i know of but i just wounder if she is having them in her sleep cause sometimes she will wake up screaming or she will puke in her sleep im just worried that something is really wrong with her and i dont know what to do anymore

Doreen - posted on 03/31/2011

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Heellloooo is this kid at the doctor yet? What type of seizures is she having - I get seizures from epilepsy and it affects only whilst I am having one and then I am very tired afterwards, but I completely normalize after some rest. A neuorologist once explained that it is the same as sticking your finger in the plug... it does affect / exchaust your organs/body and places huge pressure on it but I have only heard and know of physcial damage... I actually don't know, but it doesn't sound right at all and I would be alarmed. Poor baby - good luck

Shannintipton - posted on 03/30/2011

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Hi Kimberly, I AM NOT A DR., but have you taken her to one? It sounds like shes having more than one. Take her to a doctor.
shannin tipton

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