Sensory Processing Disorder

Alma - posted on 03/28/2011 ( 20 moms have responded )

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My 5 yr old son's OT thinks he has sensory processing disorder. Does anyone know anything about this. I've been researching but still don't understand. Any suggestions, experiences?

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Susan - posted on 03/28/2011

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I have 2 kids (out of four) with sensory processing disoreder (one is now 14 and the other is 7; one boy, one girl). Don't worry--you'll get thru it and it's great that you are already seeing an OT. I recommend the book "The Out-of-Sync Child" by Carol Stock Kranowits, M.A. Easy to read and understand; includes checklists and suggestions. Hope this helps--good luck.

Sammi - posted on 09/14/2012

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Hello, i don't know if your still learning, but experience is something I've got, my names Sammi I'm a nineteen year old (I do not have children) what I do have is Sensory processing disorder anni can tell you the things I had a hard time with and still do!

My major issues were/are;

- stairs, oh for gods sake, I'm so scared of them most times only in crowds really the noise and lack of space make my balance go nuts.

- food texture, some food textures I just can't take,like jello, jello makes me sick! Or pudding! So certain food textures he isn't going to want to touch, maybe he won't eat cooked vegetables? I won't either the texture makes me sick, but I love raw veggies so try that!

- sand, I hated walking on anything lose beneath my feet I also do, so be mindful if he doesn't like the park it's because he is scared.

- I struggle in school a fair bit as well, there's days I wake up and it's worse and I just don't want to leave the comfort of my home, sensory most times comes with other disorders I guess is how you could say it, I have ADHD, dysgraphia and sensory audio processing disorder as well so school is hard.





I'm nineteen, I've been fighting so hard with theses disorders and it's hard sometimes harder for others most people drop out of High school , I'm graduating this year after fourteen years of school, finally.



Make sure to get him diagnosed it took a long time for me and a teacher had realized I had the level of a pre kindergarten in grade two and had to be let back, I was diagnosed later on.

But just know, if I can do it so can you and your son,

Colleen - posted on 03/28/2011

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Hi Alma! First off, don't worry. Your son is going to be fine. I highly recommend the Out of Sync Child book that another mom recommended. I have a feeling that it will open your eyes to some behaviors that you see at home and it will help you learn how to deal with them.

Also, below are a couple of links to websites that might help you gain a handle on things. I have 2 sons and one is considered hypo-sensitive and the other hyper-sensitive. Interestingly - much of the therapy looks exactly the same.

http://www.spdbayarea.org/SPD_tips_for_t...

http://www.spdfoundation.net/

Iridescent - posted on 03/28/2011

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2 of mine also have it. It varies a lot from one child to the next; most have mixed reactions, oversensitive to some things and undersensitive to others. OT helps a lot to treat it, and will really help you down the line for years. We're working with our 11 year old so he can self-cope a bit better than he currently does, short term OT and we'll get the things that help him the most (if needed) at home.

Without treatment, it can mimic a lot of other disorders - ADD/ADHD/ODD/Autism. It's not. It's just one area that really should be treated and it does get better with treatment. The treatment is very individualized though because each child is so different.

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User - posted on 11/17/2012

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My son has a hard time in large venues like the circus or movie theaters. He is also a very picky eater. He doesn't have problems making friends at school or being touched only in places where the lights dim and it's very loud. I believe it may be SPD. Can anyone give me some insight.

Jennifer - posted on 11/08/2012

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OTs are generally the people to diagnose SPD -- many pediatricians are not equipped or educated to catch it. I have two children with SPD and had to discover what was wrong with my kids and why they were having such a hard time. Check out www.thesensoryspectrumblog.com for ongoing information about SPD -- it's a terrific parent resource.

CAROLYN - posted on 07/01/2012

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I have a newly turned 7 year old boy who has a sensory processing disorder. We live in RI. Looking for others that may be interested in play dates- girls or boys. If interested, please send me an e-mail at charliestomatobud118@verizon.net. :) Carolyn

Annie - posted on 12/12/2011

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hi everyone I really think my son might have this he was diangose with sendoy delay but i read the check list and well there are alot thing he does> i am going to see some doctor this thrus and i print out the check list and i am going to give it them of all the stuff he does i am just hoping they will firgure out what going on with him i wish i could help him so much

Jessica - posted on 07/06/2011

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Get him fully evaluated by as many professionals as possible. The best thing I did for my son was pay attention to his reactions and relay them and if I wasn't satisfied with their diagnosis I would push harder. 6+ pro's later we are finally at a starting point for treatment.

Alma - posted on 07/03/2011

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To Jennifer, my son was tested thru his OT at headstart (preschool). The OT has been a lot of help, but we still arent sure if this is what he has. He is also borderline ADHD. We were told to wait and see if things improve once he gets into the main structured school.

Jennifer - posted on 07/02/2011

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wow i never knew about this, my 7 yr old has a lot of develepmental delays and has always had issues with his balance nad hearring, we have taken him in over and over to so many different drs for his condition(s) and no one has been able to pinpoint a real problem other than he is just delayed... and is impulsive, he sees where he wants to be and gets there no matter what is in the way. he is boarder line for ADHA, but dr says it could go either way and doesnt want to medicate him right now. hes doing alot better and has been getting a lot of help in his motor and speech and learning issues since he was three years old but after reading some of you guys's posts im wondering if he could have this as well... whats a good way to tet for it and where is a good place to go???

Jennifer - posted on 07/02/2011

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i have a 5 yr old daughter that was just Disgnosed with SPD within the last 3 weeks and we just had our 1st Apt with her Occupational Therapist. I am in the Same Boat as You are with not knowing Much about it, my Daughter also has Developmental Delays as well !

Athena - posted on 03/29/2011

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Sensory Integration Disorder is a neurological disorder causing difficulties with processing information from the five direct senses, the sense of balance and the proprioceptive system. Information is received normally, but perceived abnormally by the brain. My 5 year old daughter's problem focuses mainly with touch. What triggers it changes and comes and goes. Her brain misinterprets certain feelings and temperature as pain or she just does not feel the pain. When she was 2 clothing hurt her, she could not be touched even brushing up on her just walking by would frustrate her to the point of tears. She could not stand the feeling or temp. of the water at bath time. She would not keep a blanket on even if she was freezing. She would cry and climb in my lap and want to be held but when i put my arms around her she could not take it. It was hard to watch her go threw all that. A child that young is just learning as it is and to be that angry and frustrated made what I was going threw nothing in comparison. I took her to several doctors who all swore it was Autism but it just did not fit. Finally her speech therapist mentioned Sensory issues. There is no cure and it will never go away but I can at least try to help her cope with it with a better understanding. The best website I have found that is straight forward is http://www.incrediblehorizons.com/sensor...
Sensory Integration is a symptom with a lot of other disabilities. My daughter is also very very OCD but I imagine it is to keep things orderly to protect herself from having to feel the frustration. She is very head strong and has ODD. She is also very smart, creative, colorful, and loving. She gives hugs now and has learned to just tell people when she does not want to be touched or when something bothers her.

Susan - posted on 03/29/2011

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My 2nd son has this...it means that 1 or more of his senses is either over or under active...with my son for example he was hyper sensitive to sound and had to sit on the outside edge of a room...hes 12 now and still has to do this...so the simple change of not sitting in the middle of a crowded room helped him tremendously. He also was undersensitive to touch so we had to use a amall plastic brush and literally brush him every few hours to teach the nerves to register touch....not a fun experience haing to excuse yourself from all kinds of things to go brush your kid head ot toe but it seems to have helped...OTs know their stuff and with play they can help the kids, I would go with whatever they are advising you, if he doesnt get better then you know they are wrong :)
good luck

Shelley - posted on 03/28/2011

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My son is almost 4 & has it our ot is our best friend & is helping to create a sensory diet for my son. Do you have an ot yet that will be the best place to start having your ? answered.

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