Suman - posted on 10/08/2014 ( no moms have responded yet )
I’m a mom and an author who has just published a book that is a memoir about my son’s experiences with his cleft-lip and palate situation. I would like to share this story with you since it’s inspirational for parents and young adult children who are suffering from this disorder. My son is now 18 and has gone through many surgeries and repairs that are chronicled in this novel. He has come out a winner, and this story is a great insight into the life of such children.
This poignant saga is a narrative non-fictional true story of this boy born in India who migrates to the U.S. at four months of age, who has been dealing with a bi-lateral cleft-lip and palate genetic disorder, since his birth eighteen years ago. This is an amazing and inspiring story that catalogs this boy’s fight for survival in his early years, his development over the years till now, and his wins as well as losses along the way.
The story is narrated in a light conversational sometimes humorous way, and includes many writing excerpts from the hero of this story himself and his sister in arms, in the form of essays and stories written by them at different ages. This novel also has a lot of chronological medical information related to all the required surgeries that bi-lateral cleft-lip and palate kids have to undergo, to arrive at some semblance of a normal visage and oral function by the end of their teen years.
I hope that this true story of a brave boy fighting the big bad world on the one hand, and dealing with his ever-changing face and growing pains on the other, will inspire parents, care-takers, and youths who are living with genetic disorders. It starts as the author's story being his main caretaker, but fast becomes his, as he becomes aware . Every chapter represents a significant set of events connected to his birth and life, eventually chronicling the highlights, the trials, tribulations and successes of every year in his life, from the time he was born to his eighteenth year.
This novel "Shifting Faces" is available on Amazon worldwide as an e-book and paperback. http://www.amazon.com/Shifting-Faces-Sum...
For more info on me, please visit my Facebook page at https://www.facebook.com/pages/Suman-Saxena-and-Sum-Saxworth-Novels/348944688557196?ref=bookmarks
Happy to answer any questions...