Son has blood in urine

Robin - posted on 10/24/2009 ( 8 moms have responded )




My 10yr old son started to pass blood in his urine about 6 months ago. When we took him to the ER, he had a UTI, was given antibiotics, and we were told to contact his ped. We did, and subsequently have been referred to a pediatric urologist, It has been during the past 4 months while being treated by the urologist, that my son has continued to pass blood in his urine on a "cycle". About once a week he passes blood and mucus in his urine for a day or is accompanied by abdominal pain, mostly on the right side. He has had CT scans, MRI's, ultrasounds, high contrast CAt scans, cystoscopy, ureteoscopy, laproscopic surgery, and abdominal surgery where they removed what they thought was a urachal cyst. Nothing has located the problem....he continues to have painful "attacks", and repeated bacterial infections. Has anyone out there ever had or heard of anyone having a child with these kind of symptoms??

I am at my wits end, and the Dr's don't seem to know what to do next. My son needs help.


Robin - posted on 10/25/2009




Thanks Jodi, and yes kidney stones was the first diagnosis. We did a 24hr urine collection, and there was a slightly elevated calcium crystalite count. They put him on diuretic medication,as well as one to strip the calcium, and we changed his diet to one with no calcium oxcylite. The attacks continued to happen, become more frequent, and more painful. The CT scans, ultrasounds,and MRI's showed no signs of stones, so they went in to take a look. When they were finally able to get to the kidney after 5 attempts (cystoscopies, and ureteroscopies) there was nothing there. That ruled out kidney stones :-( It would have been a very managable cause, so as painful as they are, I wish that was what it least we would know.


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~♥Little Miss - posted on 03/05/2014




Like Jodi, my first thought was kidney stones also. But with all of his diagnostic workups, they should have seen this. A simple ultrasound will tell all.

Jodi - posted on 10/24/2009




I'll be honest, when I read this, my first instant thought was kidney stone. I know it is rare in children, but this sounds very like the symptoms my husband had when he had kidney stones. But I'm assuming that has been ruled out? Because it is rare in children, they may not have checked for it so thought it was worth mentioning :)

Robin, you must feel so helpless not knowing what is happening to your little boy. i do hope you find a solution soon.

Robin - posted on 10/24/2009




Thank you Maria, I have looked extensively on Web Md. All of the "normal" factors for hematuria (blood in urine) have been ruled out. I just thought that if I can get this question out there to as many people as possible, that someone might have a personal connection to pull from.....the Dr's have admitted that this is not usual, not normal, and most definatley perplexing them.. I have not sought another oppinion yet. We are taking him to one of the top ranked Children's Hospital's in the US, and maybe I was nievely thinking that the Dr's there would be able to figure this out....I just don't know where to go from here.

Maria - posted on 10/24/2009




I'm sorry to hear about your son, Robin. I can just imagine what your family's going through. I know you've already probably thought or done this, but have you asked for a second opinion? It might help to get a second opinion; he/she might see something that was overlooked. Is there any other symptoms like vomiting? The reason for my curiosity is that I'm trying to find some answers online on WebMD. You might want to check the website too for information as well. Good luck!

[deleted account]

yikes Robin, so sorry to hear that.. it seems your doing what you should be and bringing him to specialists.. man i hope they come upwith something, poor baby and poor mommy, i'll say a prayer as i have no other way to contribute.. if you dont mind me asking, whats his name?.. St Gerard is protector of children, esp sick ones

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