Spinal Bifda occulta with tethered spinal cord syndrome

Tiwanda - posted on 01/02/2016 ( no moms have responded yet )




My dauughter was born with SBO/ TCS that was discovered at 6months of age. We have been seeing a neurosurgeon at NOCH and he has put off surgery until now. She was born at 32weeks in May 2014 and was overhall healthy other than having a right club foot and hip leg discrepancy which Shriners has been treating since she was a month old.Is there any mother here that knows or has been through this situation that can give us as her parents some comfort.

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