This grandma of a preemie granddaughter with hydroencephalus and shunt needs some advice.

Billie - posted on 07/25/2013 ( no moms have responded yet )

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My first grandchild, Ryleigh Grace, was born at 33 weeks and 3 lbs. due to preeclampsia. She had a shunt inserted immediately and endured six surgeries within the first six months of her life due to the shunt's failure to work and staph infection. She is now two and a half years old, is still not talking beyond baby babble, can stand and walk with assistance (has club feet and is getting orthotics), and has not been diagnosed with any other handicaps beyond a slow and latent growth rate. Have any other moms out there experienced similar latent speech patterns? Also, she occasionally will be sitting and suddenly thrust out her arms and legs straight for only a few seconds as if excited, then stops. I've worked with all forms of special needs children of every age group for 16 years and have seen every disability possible. I want to be sure I am advising my son correctly when he asks if they are doing all that they can for Ryleigh. Have any of you experienced these same conditions with your son/daughter and were there any diagnosis from doctors of a condition we may be overlooking?

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