Vicki - posted on 06/25/2013 ( 4 moms have responded )
I was happy to find circle of moms while searching around for info on Topomax. My daughter (9 years old) started having migraine headaches a few months ago. When I think about it, she's had headaches from time to time, some more severe than others, but it was maybe once or twice a year and I didn't make the connection that they might be migraines (I get them) until she had one bad enough to wake her up at night (pounding headache). They've steadily increased and my be due to approaching puberty. She had an MRI (normal). I kept a headache diary for 2 months and as she was getting headaches so frequently, the neurologist decided to put her on Topomax.
She's only been on it for about ten days. No side-effects, but she's on a low dose. Her dosage will be increased soon. She's in summer camp. She's good at following directions, and we're impressing upon her (and the camp) the importance of staying hydrated. I'll also be monitoring her closely re: her ability to sweat.
My question is this: for the moms of school-aged kids on topomax, did you see a decline in performance? My daughter starts 5th grade in the fall. I wonder if things will balance out by then with the topomax, to where she can continue to perform well in school. She's not a genius by any stretch, but she likes school and likes doing well, so I'm concerned that the topomax could have an effect on her school performance.
In my case, I'm not as concerned with the possible effect on her appetite. She was a 9 pound baby and came out hungry. :) She's always been a big eater and a little on the chubby side. She and I have been working on making good food choices, so in that sense the topomax could likely help....though I wish she didn't have to be on a medication at all. Would appreciate hearing others whose children have been on topomax for a "long" time.