Tourette's Syndrome and Child Tics

Cassy - posted on 04/29/2009 ( 13 moms have responded )

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I need more info on Tourette's Syndrome and Child Tics

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Laura - posted on 07/20/2013

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My daughter was diagnosed with Tourette's ADHD and OCD last week but she has had it for a while I am trying to find help and opinions on meds she was put on clonodine syrup and getting ssi for her. Thank you

Cassy - posted on 05/01/2009

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thanks to everyone who has wrote so far. I did get that book from the library. Hope to start it this weekend. And I've got some ideas of other things to check into as well. I appreciate your input.

[deleted account]

Quoting Libby:

I think if you are aware of something that is a stresser to her then either help her avoid it or help find ways through counseling that will help her deal with it. My son also does thing with his clothes. His socks have to be a certain way and his underwear and pants have to be a certain place on his hips. But you know, I'd say we all have our tendencies. I'm a nail biter. I also sniffle a lot. I also touch my eyes a lot. So, I've come to realize as long as these tics aren't effecting my son in school or anything then I'm going to let it go. He has changed tics and stuck to them for months, but I also wouldn't want him diagnosed with Tourette's if I wasn't positive he had it, and if the doc's weren't positive too. What does her counselor say about the tics?



I can't really speak from personal experience, but my son has a friend who has OCD and another friend who has Aspergers syndrome. Both boys have "tics" . Some that come and go and some that are constant (blinking, coughing, head shaking etc.)  The one with Aspergers is very particular about "things".  He won't eat sliced apples if they have any brown marks from where they were cut, his clothes need to fit a certain way, and he is bothered by a change in routine to name a few. Both have difficulty with their emotions. They may have an outburst or be upset by something that another child would just shug off and the one with Aspegers has trouble sometime "connecting" emotionally. Just something to think about.

[deleted account]

Quoting Libby:

I think if you are aware of something that is a stresser to her then either help her avoid it or help find ways through counseling that will help her deal with it. My son also does thing with his clothes. His socks have to be a certain way and his underwear and pants have to be a certain place on his hips. But you know, I'd say we all have our tendencies. I'm a nail biter. I also sniffle a lot. I also touch my eyes a lot. So, I've come to realize as long as these tics aren't effecting my son in school or anything then I'm going to let it go. He has changed tics and stuck to them for months, but I also wouldn't want him diagnosed with Tourette's if I wasn't positive he had it, and if the doc's weren't positive too. What does her counselor say about the tics?



I can't really speak from personal experience, but my son has a friend who has OCD and another friend who has Aspergers syndrome. Both boys have "tics" . Some that come and go and some that are constant (blinking, coughing, head shaking etc.)  The one with Aspergers is very particular about "things".  He won't eat sliced apples if they have any brown marks from where they were cut, his clothes need to fit a certain way, and he is bothered by a change in routine to name a few. Both have difficulty with their emotions. They may have an outburst or be upset by something that another child would just shug off and the one with Aspegers has trouble sometime "connecting" emotionally. Just something to think about.

Shanna - posted on 05/01/2009

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I also was relieved when we got a diagnosis,there is nothing wrong with having TS.Knowing what was going on gave me the tools I needed to help her learn to deal with issues of TS.She at least understands why she is doing the things she does and doesn't feel like it's her fault,I think she felt less weird or different from the other kids once we found out.

User - posted on 04/29/2009

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My "advice" is to be thankful you know what is going on. I'm 40 and can look back and see that I've been living with TS since around your daughter's age. When I was growing up, people didn't know what it was. Even my psychiatrist and a neurologist didn't catch it. It wasn't just other kids that made fun of me, but even a few family members, including my father. I'm so thankful that if your daughter does have TS, you're on top of it. Find a neurologist who knows about it and go from there.

Cassy - posted on 04/29/2009

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She started counseling right after they quit. She is just starting back up and I don't think he noticed. I don't think it's Tourette's but my concern is what is stressing her to cause the tics. Which I guess there may be no cause for. It's just hard seeing her do it and not knowing why.

Libby - posted on 04/29/2009

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I think if you are aware of something that is a stresser to her then either help her avoid it or help find ways through counseling that will help her deal with it. My son also does thing with his clothes. His socks have to be a certain way and his underwear and pants have to be a certain place on his hips. But you know, I'd say we all have our tendencies. I'm a nail biter. I also sniffle a lot. I also touch my eyes a lot. So, I've come to realize as long as these tics aren't effecting my son in school or anything then I'm going to let it go. He has changed tics and stuck to them for months, but I also wouldn't want him diagnosed with Tourette's if I wasn't positive he had it, and if the doc's weren't positive too. What does her counselor say about the tics?

Cassy - posted on 04/29/2009

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Jenifer M -- Thanks! I requested the book from the library. The web site didn't seem to tell me anything new. My daughter is 9 and a half. Last Aug. she had 4 or 5 shoulder shrugging, eye blinking, nodding and a sniffing noise. All at the same time. Consistently from the time she woke up. I saw a show on Dr. Phil about Tourette's and realized these things she was doing were the tics. In evaluating her I realized she had done the shoulder shrugging before but not even to be a big deal. Now in reading others stories I'm realizing there are more that I didn't realize were tics. Tugging at the bottom of her shirt , clearing her throat and coughing off the top of my head. I think there may be more if I pay closer attention. Clear back to about the age almost 6 when she started kindergarten. Last year was the worst. But I'm nervous now that she's starting back up because I'm afraid it will be worse than before. She is starting puberty also. I noticed, once I realized it was tics, that saying something to her made it worse. Instead I try to do something with her to help her calm down or not be nervous. She has bee having some trouble in school and at home with regular responsibilities and I wonder if it's from this even though there are no symptoms right now. Any advice from anyone would be greatly appreciated. Oh she's also been in counseling since Nov.

Shanna - posted on 04/29/2009

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She has already been diagnosed and has been taking medication for OCD and anxiety the meds really help her but she needs to be fallowed by someone that knows what they are doing I would think.She has gotten better with the tics as she has gotten older but she will soon be going through puberty and I'm told things will get worse then.We recently moved here to Kansas from Arkansas where she was originally diagnosed I've tried to find someone for her to see but had no luck.

Libby - posted on 04/29/2009

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Here's what I know, because my son has had several tics through the years. Tourette's is VERY hard to diagnose b/c your child has to have a tic every day for an entire year. If there is one day without the tic it is not Tourette's. I think it is that way b/c my doctor said once your child is diagnosed with that it is something that sticks with them for insurance reasons and such. My son has had motor tics (blinking), verbal tics (squeaking), etc. He has mostly grown out of them (he is 7 now). I have noticed my other son had developed a tic for a short period of time by clearing his throat constantly. My doc told me that most tics are developed because of another reason, like a cold. Like the clearing the throat thing my son did when he had a cold and his throat was bothering him. The same thing about the blinking with my oldest. He had a cold and watery eyes and started blinking all the time. But usually these tics last long after the cold or other reason is gone. It used to make me really mad until I realized (my oldest) had NO idea he was doing it. The squeaking thing he did with his throat was what bothered me. Anyway, just try to ignore it. If it does seem extreme then start documenting it daily so you have some information when you need to go to a doctor about it. But realize, there isn't really a treatment for it. And you do NOT want your child diagnosed with Tourette's without being sure that is what it is.

Shanna - posted on 04/29/2009

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My daughter is 11 and was diagnosed at 7,there is very limited treatment where we live now,it feels like we are on our own here.The doctors I've tried don't know anything about tourettes any advise????

Jenifer - posted on 04/29/2009

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Okay now I have the info I was looking for. There's a great book by James Patterson, non-fiction called "Against Medical Advise" It's a story about a child and his family growing up with tourette's, and all the stuff they went through. Also there's a website for the Tourette's Syndrome Association address is http://www.tsa-usa.org/ Hope this helps it's all I have I'm afraid.

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