Destiny - posted on 06/18/2012 ( 4 moms have responded )
My youngest child was Born with Vater syndrome. He has had 5 surgeries in total including, Trachea esphogial repair, perforated anus repair, colostomy bag, colostomy reversal and has had his appendix removed. After he had his colostomy reversal he broke out with a horrendous diaper rash, but that was easily fixed with regular cornstarch. This issue now is that my son now 1yr old has over 30 red blister like bumps surrounding his rectum. These bumps bleed and cause him a great deal of pain. He has had these bumps for about 5 months now and every time we go to the doctor at University of Kentucky they keep telling us that they have no idea what they are and to go to a different hospital. Well this last time we went to the doctors we sat in there for 2 hours staright talking to the doctor about what we can do, at some during the discussion the doctor seemed to be over irritated that we kept coming to them with the same question and made the decision that they were and i quote " We have no idea what is going on with your son, so we will just put a colostomy bag back on him and let his butt sit for 6 months." Now i would never deny my child the care that he needs put to me it sounds like the doctors are finding a temporary fix for my son so that we leave them alone. I have spent numerous hours on the phone trying to find another doctor in Kentucky or Ohio and even Indiana. I guess my question is, has any of the moms children had these bumps before? If so what were some things that the doctors did to help it and did it work? Also any suggestions for a good reliable pediatric gastroenterology doctors is very much appreciated! We are trying to get our son better and seem to just be running in circles. Please help me!