Julie Mary - posted on 09/25/2013 ( no moms have responded yet )
Anyone who can help me help my son! My son is 20, so i'm not a young mum. I just realised that this site is the circle of "moms" which is an american spelling. Is there anyone out there who is from the uk, or has a link to the uk to help me get my son get out of hospital and off drugs that he has been on since 17 years old. They are destroying him and the family. The Ward Dr has refused to let him have an autistic assessment that we have been trying to get for 10 years, it was going to be with an excellent specialist. The Dr knows this will give many answers and make her diagnoses of bi polar wrong. We have complained to many organisations that we feel my son has been misdiagnosed.
She has contrived a reason for the assessment not to go ahead, the first was "we don't know if we will have the staff to take him" the second was a letter saying hes too ill to consent. And yet we told him about the assessment and he was counting down the days.
The hospital staff are controlling my son, convincing him he wants to go to another hospital and they are controlling us by only letting us see him an hour a day supervised. He feels abondoned and is relying on them. He has a solicitor who isn't allowed to talk to us because he is over 18, but has the mental age of about 13 and isn't street wise.
He has suffered with classic Autistic traits all his life, which have been recognised by professionals, but no assessment was offered. One Dr did say he needs one, but that was it.
He went to mainstream school, but was badly bullied because of communication thought process difficulties. I home schooled him from age 11-14, but had to stop because he was focusing. He suffered anxiety from a very young age and then panic attacks and ocd from age 12 upwards quite badly.
The only possitive thing is that he has a unique interests in languages, which makes me feel that he may be high end Autistic Spectrum.
The reason he first ended up in hospital in 2010 at age 17 was because he went through a period of withdrawal because of panics again, he was also over loaded with his ocd thoughts. He wanted to learn and learn and spent alot of hours on the net and playing video games, which became part of him. So he hadn't really slept properly for about a week, plus he was looking at unsavory things on satanic sites, which i had no knowledge of, he became overwhelmed and we believe now he had an autistic meltdown and yet the services we called in our panic said it was a psychotic episode!!
That was it, the rest is history. Is there anyone out there that knows or knows someone who can find a law that insists the DR should let my son have his assessment.
I have been a single mom since 1998, my eldest son was 9 then, Josh who is in hospital was nearly 6. It's been a long haul! I am a carer for my eldest too who is also on the spectrum, the high end again, but he had all his meltdown at an earlier age. And he did break things and run off etc, but then he started to recluse himself about age 15, now hes 24, and has got through the meltdowns, he still suffers anxiety and ocd, but he has made strides with his own determination. I have some good chats with him, hes still very contained, but determined.
We are both really worried about my younger son. My mum has been supporting me and helping me to fight.
At the moment my son is 10 minutes drive away, but the "team" involved want to send him away for retraining for independent living, they are dividing my family and destroying it, because they think they know best, we mums know best, how do we get them to listen to us?
Can anyone help me.
regards and best wishes to you all . julie