We just found out my 11 year old has significant hearing loss and she was born with it but passed her newborn hearing test when her Dr said she should have never passed...

Crystal - posted on 07/18/2014 ( 2 moms have responded )

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Hello,
My name is crystal and I'm the mother of 4 beautiful girls. I had my oldest a month before I turned 16. Lately she had been having hearing problems. Her pediatrician sent her to a e.n.t. specialist, her appointment was yesterday (July 17). It was our second opinion and it was confirmed that she has significant hearing loss. And that she was born with it. Her Dr said that she should have never passed her newborn hearing test. But I have all the paperwork that says she did. Both her and I were born in California and we now live in Indiana.
She has learned to coop by reading lips. She also has to have a cat scan done cuz the Dr said that there is a wire that connects the eardrum to her brain and it might be loose. And if it is then she can't do sports or be hit in the head at all cuz she can loose all hearing if she does get hit. They didn't give us a name. She is excited cuz she can choose colors and bling for her hearing aids. And she is going to hear things that she never has heard before. We are staying positive. But is there anyone out there that is going thru something similar? And does it have a name? I'm also looking for friends and support! I'm scared for my daughter, she is going in to 6th grade and I know from personal experience how mean kids can be. I would like to hear from anyone. Thank you for reading
Crystal & Kylie

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Crystal - posted on 07/18/2014

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Thank you! And she is. She is a straight A student and has stunned Dr's because she has done so well in school. She has a heart of gold.

Chet - posted on 07/18/2014

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I don't have any real advice. I have very little experience with children who are hard of hearing like your daughter. I just wanted to post and say that your daughter is clearly a great kid though.

She's obviously very bright to have coped so well on her own for so long, and to have learned to have read lips. She sounds like she's a very positive child too - being excited about her hearing aids. Being smart, resourceful and positive are all going to help her to deal with this.

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