Stacy - posted on 07/15/2014 ( no moms have responded yet )
I would love to talk to any mom out there that has a child with this rare lung disease. My water broke at 29 weeks and I delivered at 30 weeks. 10 days after he was born his O2 levels decreased to 85%. After a visit from the pulmonary dr and xrays - he was diagnosed with Wilson Mikity Syndrome. This is such a rare lung condition. I have been trying to talk with a mom who may have a child with this???? It is so rare and so frustrating. I want to know if I did something during my pregnancy to contribute to this or what?????