4 year old boy with sensory processing disorder

Tracy-ann - posted on 12/10/2011 ( 16 moms have responded )

54

13

12

i was just wondering if there are any other mothers or fathers that have children with this i just recently found out he has been in school since sept and never a good day i have argued with the principal to the point of no return a school phsycolgist was called in and now we are finally getting somewhere they have him down to only 2 hours a day he wants to stay so when he gets picked up there is another trigger that sets him off.I am just looking for some words of encouragement i guess as a mother i keep thinking if it was something that i did.I know it wasnt but that is what parents do right is take blame i just want to be able to help him the best i can and not have him hurting anyone.thanks for taking the time to read.

MOST HELPFUL POSTS

Kisa - posted on 12/12/2011

13

10

0

Oh boy, how do I "get it" also. my 5yr old boy is an SPD seeker. he seeks all areas of input; vestibular, proprioception, oral, tactile etc. constant mov't, touching, picking etc. He has some very mild sensitivities but mostly seeks. He has been in OT for 2.5years and is probably about to graduate.
yes as others have said you need to get an OT eval and get private OT outside of school that specializes in SPD. They will do so much more for your son and you then the school can. we rely on the schools to much and they can't do it all.The brain looses its amazing plasticity around age 6, so the more intense therapies you can do until then the better and will set him up better for life.
My son will always have seeking issues, but he is learning how to recognize what he needs. ex: he is able, at times, to now tell me if he is really really hungry or thirsty and tells me he needs "gas". that means food or water. He used to get so hungry or thirsty at times he would literally be running and just stop and be unable to move. of course that didn;t happen much since we rarely let it get to that point. He just didn't feel or realize what he needed until he was throwing fits. He took a group OT class called "How does Your Engine Run." it helps the kids learn how they function and how to bring their "engine" to the right speed, low, medium or high. Great program. Kids do need to be around 5 at youngest though. We are also doing listening therapy (special headphones and classical music).
So I suggest you push and work on getting a private OT eval and see what coverage your insurance allows.
You will be amazed what a few months of OT can do for you, your son and your family. I finally told my husband that either something was wrong with him or me. and that my son needed an OT eval and if nothing was wrong with him then I needed counseling and parenting class. It seems it is always hard on the husbands, or dads, of the child. expecially if their kid is a boy. Over time my husband does realize there is something and is willing to learn how to handle him. It is always changing and we have to stay on our toes and think about what is going on and why.
NO ONE understand how HARD and utterly exhausting these kids are. People think they do when you said your boy is over the top active. But they don;t. but other SPD moms sure do, so we have to help eachother.
Let us know how it is going. Oh, we did brushing program at the beginning and it helped a lot, and I just restarted it again the other day due to lots of anger and full blown tantrums for no reason. He said he feels "itchy" all over and it makes him irritable. So he agree to try brushing again and he says it feels good.
Take care.

Kay - posted on 12/12/2011

1

4

0

Please find a good OT to help you at home and have OT added to the IEP at school. Sensory processing disorder is very real and the people who work with your son need to understand and respect the implications of it. What may appear to be behavior problems can be a neurological inability to process environmental stimuli like most folks do. The result can be overstimuation, or a shutdown, either of which can appear to be behavior problems to those who do not understand. There are treatments and modifications of the environment which can help.

Pam - posted on 12/12/2011

3

0

0

Has he been diagnosed, or is this the suggestion of the school psychologist? Find a good OT in your area (ask your pediatrician for recommendations) and have an assessment performed. We have an OT, a speech therapist, and a child therapist working with my son and our whole family. The child therapist is especially helpful for DH and me in regards to changing the way we deal with DS.

Gillian - posted on 12/12/2011

12

0

0

I would say as Cathy stated to get an OT eval and treatment if you aren't already. That Should help and will give you ideas of other things you can do with him to integrate him sensory wise. The OT at school could see him while he is in school also. I would try to see OT in the school and in a clinic as an outpatient in your situation because they are different in some ways. The school OT could help with a program for him to be more successful while there.

Jennifer - posted on 11/08/2012

3

0

0

I have two children with SPD. As a mom, our kid often only has us to be their advocate. Listen to your intuition!!! To get ongoing articles about SPD to help you on your journey, check out www.thesensoryspectrumblog.com

This conversation has been closed to further comments

16 Comments

View replies by

Juanice - posted on 01/04/2012

10

57

1

My 2yr old daughter has sensory disorder, I have been fighting tooth and nail to have her tested and to get this down officaly and it has been nuts. The child study center here in ft.worth have a 6 month wait list, so she will be 3 before she can be seen. I went to ECI and had her evaluated and we now have OT but nothing seems to help. SO I understand where you ladies are coming from.

Tracy-ann - posted on 12/26/2011

54

13

12

i am waitting for them to contact me the school says there is a 3 year wait so depending on the wait i may haft to go through another source

Pam - posted on 12/13/2011

3

0

0

Oh! Yes! Like Kisa, we use the Wilbarger Brushing Protocol. DS goes from bouncing off the walls to sitting quietly with a book within minutes. Don't try to do it without training, though. There are certain areas you're not supposed to brush, and you have to have a really firm hand when you do it, otherwise it tickles and doesn't work. We learned from our OT and then trained the teachers at DS' preschool.



We've also recently started the music listening program with the OT.

Jenn - posted on 12/12/2011

6

22

0

As mentioned a few times go see an OT. They will help to design a program that is catered to your son's needs. A good book to read is "sensational child", it lists the different SPDs and helps to understand his needs better. Good luck

Heather - posted on 12/12/2011

534

65

0

Yes, my 4 year old son also has Sensory Integration Disorder. It is NOTHING that you did. Your welcome to email me and we can talk more. You can also look me up on Facebook by my email. I am currently on and offline though until Jan. 5th, as I am out of town, but still reading and checking my email at least once a day.

Our son goes to special Ed PreK that is offered by our local public school and they also give our son speech therapy and OT therapy. The best thing that you can do is to ask your Pediatrician to refer you and your son over to a specialist to have him actually, medically diagnosed. The school cannot give you a formal diagnosis. We had to have our son tested for that or possible Autism by a Specialist who works at our local children's hospital. They see children with Autism, Aspherger's, and Sensory Integration Disorder.

I can help you learn everything, and more, that you want to know. I will even mail you a book to help you learn about your son and to help you to help him, get through everyday life.

Your son sounds just like mine. As he likes school, and always has issues when it's time to go home. He goes to school for 3 hours, 4 days a week, and he would go 7 days a week if he could. He really is enjoying it now, finally. But, our son has some behavioral issues, and now they want someone to come and watch Matthew and give their opinions on how to deal with him. GRR... I am really not happy about this and when we get back home I am going to request a meeting with his teachers to teach them how to deal with him. I even offered to sit in on a class to help them learn to deal with him, but I was told no. So now it's time to bring the principal into it. I hate this, but you have to stand up for what you believe and feel is right for your son. Even if your husband believes that there is nothing wrong with him, which mine thinks that our son is a spoiled brat and gets his way too much. I don't like the way my husband punishes our son all of the time, but, right now, there's not too much that I can say that doesn't cause a fight about how I deal with our son. I pick my battles, and not everything needs to be a fight with him if you know the tricks and know how to make our son do what we want him to do.

Heather

Lakeisha - posted on 12/12/2011

6

24

0

See if your community has a preschool intervention program that could possibly service your son and implement an individual service plan. This will assist your son with becoming familiar wih the school process. Good luck and don't give up!

Lori - posted on 12/12/2011

1

0

0

Hello, yes I definetly fill your pain with having a child with sensory processing disorder. My daughter is 11 and strugglesl everyday with it. She has been put on medication, is in occupational therapy(which helps tremendously ). She struggles in school, is very picky, dislike many different textures of foods, clothes have to feel and fit a particular way, snd she is very compulsive. It is something many parents don't understand or even have a clue of what we as parents deal with. There are several good books out about the disorder. I got them and they do help with dealing with it and the frustrations. Lori

April - posted on 12/11/2011

7

1

1

I suspect my four year old son also has sensory processing disorder, but not officially diagnosed yet. He is issues with eating certain textures of foods, very picky, doesn't like is hands or face to be messy, doesn't like stickyness on hands or face and flaps his arms/hands and kicks his legs/feet when lying on floor. I live in Wilmington, DE. Maybe we can meet up sometime for a playdate?

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms