aspbergers syndrome? something else?

Rosie - posted on 12/22/2009 ( 130 moms have responded )

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how do you get a child examined for aspbergers and what are some of the things they look for in a child with this disorder? my 9 year old has always been different, and doesn't know how to act socialially. he's been diagnosed with adhd, but i feel like there is something more. i;ve looked at pamphlets and stuff and he does have alot of the requirements to be diagnosed, but alot of the other requirements he doesn't have. i don't know.... are there any other social disorders out there, he's not violent or hateful, he just doesn't act the "normal" way in social situations.

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Along with talking to his doctor is there a specialist at your son's school you can talk too? I know at my school the specialist observes the child, asked the teacher to fill out a daily observation report for a week then depending on those results recommends them for testing through the school district.

Kim - posted on 12/23/2009

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My son is know 20 and was diagnosed when he was in 2nd grade. Things we noticed were very similar to Autism. Instead of playing w/toys, he took them apart. He was not athletic and had poor motor skills. Couldn't skip, gallop etc. He had a deah grip on his pencils and silverwear and hated change. If we said we were having one thing for supper and I made something else, it was chaos. He also would only wear certain clothes and always surrounded himself with items as if he needed to feel comforted. He had no friends and was a perfectionist... He struggled very much in school and refused to ask for help and would fall behind. Any mistakes or if it didnt look right, he would erase the whole page instead of the item that was wrong and then get mad. He took everything you said to him LITERALLY. Basically, you had to break down directions for him as too many overwhelmed him and he would get confused. He had to have an IP program in school and look up Section 504 which can help immensly. Our phychiarist is the one who diagnosed him and with the help of medication, school support and therapy, he graduated HS. He was in 11th grade until he even made friends. The biggest thing for children with Aspergers is structure. They need to have every minute scheduled and the same thing every day and they can also have addictive personalities or traits and we had to monitor his time on PC's, electronics etc or the more time he was on them, the angrier he would get. I hope this helps.

Janet - posted on 12/23/2009

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Aspergers is related to Autism. Social interaction is a big part of both. You need to plead your case to your GP and get a referral to a paeditrician. Getting the referral can sometimes be the hard part. My child has autism and I took him when he was at his worst and got the referral. You could approach your local spastic centre they have great information and may be able to help you. Another dept is Docs. Hope this helps

Jane - posted on 12/23/2009

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Hi Kati, you need to see a pediatrician to see if your son has Aspergers syndrome. There are so many different variations of aspergers so it is hard to self diagnose. I would suggest you ring your nearest Autism association organisation. They will be able to refer you to a pediatrician who specialises in aspergers and autism (aspergers is a branch of autism I think). Then you can go from there. Good luck.

Patrice - posted on 12/23/2009

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Quoting Ylice:

Sounds like your daughter has Sensory Integration. I worked with his school so that when he gets overwhelmed, he can go to the lunchroom monitors and be excused to a predetermined quiet spot to eat. I think the big thing with SI (Common in Aspie kids) is to get them to realize when they are starting to feel jittery and uncomfortable, and know that it is okay to ask to change their surroundings. I too have SI, and I have found that if I wear ear plugs at concerts and other loud places, that I can actually have a good time, rather than feel like I am jumping out of my skin. It is not a good feeling, but when you know how to deal with it, it is easily avoided.

I thought about home schooling my Aspie kid, but decided the only way he was going to get practice being social was being out in the world with his peers. We too have come a long way from weighted vests, brushing, rubbing and even laying on him to reach a calm state. It isn't an easy haul, but they are very special people with so much to give.

WTG on your progress with your girl! ;-)


Cass has a ton of opportunities to socialize with people of all ages as a home schooler, SI creates lots of issues , with Cass , she cant stay in the fellowship hall at church for coffee hour for more than 3 minutes, if the mall is busy or any place with that ambient noise we just cant do , the only other thing that she really cannot stand is Disney, the big headed costumes freak her out but she is looking forward to the wizarding world of harry potter , when we travel we take the train and soccer was a complete traumatic disaster that took nearly a year of promising that she would stick to pageants and not do soccer to get beyond the experience ,close to the same reaction with girl scouts she used to hide under the bed and scream that she did not want to go , she likes youth group at church though , it is a tightrope sometimes 

Rosie - posted on 12/23/2009

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thank u everyone. i have talked to a psychologist about it and they seemed to dismiss me. i just need to try harder or get him another one for another opinion.

Yvonne - posted on 12/23/2009

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Check out the website www.generationrescue.org. There are "rescue angels" (moms from all over who volunteer to talk to you - or e-mail you to help you with questions).
There is a ton of information on this website - including good doctors who know about this condition. Also, Thoughtful House in Austin (probably google it) is a really good place, I'm sure they have a website with much info on it.

Eileen - posted on 12/23/2009

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Your pediatrician should be able to refer you to a neurologist. The school psychiatrist should also have the name of a neurologist on hand.

Sandra - posted on 12/23/2009

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My son was had some symptoms but it wasn't until he started school that it became clear he needed some help. The special school district actually works in my kids school district so they observed him for a couple of weeks and gave him a variety of tests; plus, there were a bunch of questionnaires for my husband and I to fill out. The result was high functioning Aspergers. With that information the special teachers at school were able to start working with him on social skills, as well as how to handle his emotions and frustrations at school, and anything else he needed. He is now in the third grade and he still gets help for learning issues as well as support for social skills; but, he has learned how to interact with other people and can actually start playing with new kids at playgrounds.

[deleted account]

Sounds like your daughter has Sensory Integration. I worked with his school so that when he gets overwhelmed, he can go to the lunchroom monitors and be excused to a predetermined quiet spot to eat. I think the big thing with SI (Common in Aspie kids) is to get them to realize when they are starting to feel jittery and uncomfortable, and know that it is okay to ask to change their surroundings. I too have SI, and I have found that if I wear ear plugs at concerts and other loud places, that I can actually have a good time, rather than feel like I am jumping out of my skin. It is not a good feeling, but when you know how to deal with it, it is easily avoided.

I thought about home schooling my Aspie kid, but decided the only way he was going to get practice being social was being out in the world with his peers. We too have come a long way from weighted vests, brushing, rubbing and even laying on him to reach a calm state. It isn't an easy haul, but they are very special people with so much to give.

WTG on your progress with your girl! ;-)

Patrice - posted on 12/23/2009

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Quoting Colleen:

My son was diagnosed this fall with Aspergers. He had ADHD (which is a symptom of Aspergers often) and his Dr. thought he should have a further review. He had tests with a neurosphychologist that confirmed the diagnosis. I was surprised b/c my son is very social, but he doesn't engage in two way conversations. He just talks and talks. The diagnosis is scary, but it's a high functioning type of autism. The best news is that once he is considered Autistic, he can get a lot of free support at school. Good Luck!


My daughter is an aspie, we have found home schooling to be the best possible choice for her it gives us the freedom to tailor her day to her needs and she has been quite successful. Cass engages in two way conversation and can look people straight in the eye while talking to them, she no longer rocks and she no longer needs brushing we have found practical ways to deal with most sensory issues , she is a straight a student and has several interests and hobbies , she still has fixation issues and some motor skill issues , she has friends and she enjoys doing things with other kids as long as it is not dirty or loud , things like chuck e cheese , the rain forest cafe, or any loud cafeteria style environment is unbearable for her , cass has age appropriate interests , she likes beauty pageants , harry potter and lots of other book series , she loves to write and draw and she adores space science and she likes to go watch the college quidditch team, she also has aspirations of going to liberty university to become a full time youth pastor , our journey with aspie has been interesting exciting, difficult, and rewarding god has given her many gifts where he took many away from her 

[deleted account]

Quoting kati:

aspbergers syndrome? something else?

how do you get a child examined for aspbergers and what are some of the things they look for in a child with this disorder? my 9 year old has always been different, and doesn't know how to act socialially. he's been diagnosed with adhd, but i feel like there is something more. i;ve looked at pamphlets and stuff and he does have alot of the requirements to be diagnosed, but alot of the other requirements he doesn't have. i don't know.... are there any other social disorders out there, he's not violent or hateful, he just doesn't act the "normal" way in social situations.


Hi!



I have an Aspie son, so I understand the confusion.



Read this page:



http://www.aspergers.com/aspcrit.htm



You will notice that for each area they must fit ONE or TWO...  NOT all. I have never really seen violence as being a criteria ... although I would guess that some children could be very frustrated and become angry.  My boy tends to have meltdowns when he gets overwhelmed.



Social difficulties is a big one... but so is focus on one area of interest to the point that they leave little room for anything else.  They are natural experts in whatever they focus on. 



You don't mention if he has other developmental delays, but I would take him to a psychologist that specializes in Autism to have him tested.  If he does have it, you can get him help within his Special Education at school, as they can work to help them overcome social issues.



I wish you luck, but don't dispair if he does have Aspergers.  These are special people with amazing minds.  It isn't easy, but life seldom is... we all have our hurdles.  Hang in there!



 



 

Eliana - posted on 12/23/2009

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My son is 10 and was just diagnosed with Aspergers. There are different levels as well so not all the systems my fit, however he may have enough to be diagnosed. I would suggest going to a physcologist that specializes in autism spectrum disorders.

Emily - posted on 12/23/2009

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My son was diagnosed with autism at three years old. He has just been going to autism doctors to discuss which kind of autism he has. The main word for us is aspbergers. He hasn't met with the psychologist yet, so they can't officially say so, but this so far is the place where he fits.

We started by talking to our pediatrician. He knew the symptoms to look for (like no eye contact, always putting things in order in a line, socially behind, extreme intelligence, etc.) and our pediatrician had the contacts to the autism specialists and psychologists. Talk to your pediatrician to get your contacts.

Put together a list of behaviors your son has, discuss each one with your doctor/s and don't leave any one out. If you don't agree with any diagnosis, or you feel uncomfortable about it, tell them! Talk it all out while you're there. Go over every concern so that your son can be properly diagnosed.

Remember, autism is a very wide spectrum, so no two autistic kids are the same.

Have fun with it- your son is the same whether he has an official diagnosis or not.

Good luck!

Staci - posted on 12/23/2009

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he needs to be evaluated by a neurologist or a psychologist.. either can dx asperbergers.. asperbergers kids act differently in social situations, they do not make eye contact... thats all i really know..

Shirley - posted on 12/23/2009

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My son now 19 was diagnosed with high funtioning autism when he was 10. The testing began when he was 9 as well. A teacher of his had read an article on aspbergers and showed it to me which rang some bells for us mentally. I requested an CST through the school (Child Study Team) to be done by the Autistic Team specifically. Check with your school and your school district to see if they too have such a team. They are trained professionals. Your pediatrician should be able to quide you to an Autistic care facitlity in your area hopefully who may be able to assist in testing and determining as well. Apbergers is a higher functioning autism: great grasp of vocabulary but are unable to understand all social rules and nuances that occur socially. My son is just below apbergers and socially is more like a 9 year old even today, but can do such amazing things. Feel free to respond back to me if you wish to talk further.
Shirley

Nichol - posted on 12/23/2009

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You should really discuss this with your child's doctor. We noticed that at the age of 3 our son still wasn't talking but he had these obsessive traits that he was adamant about. We talked with his doctor and they sent him to a specialist. At three it was difficult to diagnose but by kindergarten we had a diagnosis of high-functioning autism with aspbergers syndrome. It has been difficult but with the right therapy available through school and some private speech he is doing very well.

Susan - posted on 12/23/2009

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Dear Kati,



My Masters thesis was about Aspbergers Syndrome. But, I didn't really understand the characteristics of the disorder until I read "Eating an Artichoke" by Echo Fling. The story is a memior about Mrs. Fling's relationship with her son, who has been diagnosed with Aspbergers. The book offers insight into the disorder, its diagnosis and strategies for treatment.



If your school district or your pediatrician cannot recommend an appropriate professional, you may wish to contact the CDC. Right now, this agency is campaigning to diagnose Autistic Spectrum disorders. I think any competant child psychologist could ease some of your concerns and offer stategies to help your son if necessary. Another specialist who might be able to help you would be a clinical neuropsychologist. One of these individuals should perform a "theory of the mind" screening. This is a test that determines to what degree you son can see the world from the perspective of another person. There is another test psychologists use which helps determine the decree to which your son can shift from one mental image to another. I hope that makes sense. They may also perform this test as well. Those tests along with a thourogh history should enable any competant professional to determine whether you child meets the diagnostic definition for Aspbergers syndrome.



I hope you find this information helpful.

Take Care,

Sue

Jodi - posted on 12/23/2009

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Kati
You should take him to a neuropsychologist or a neurologist. There are some checklists (GARS) that they will have you fill out and your child's teachers fill out.

Yolanda - posted on 12/23/2009

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i feel you and i don't think it's adhd that just what they want to threw at parents all the time.

[deleted account]

My son was diagnosed this fall with Aspergers. He had ADHD (which is a symptom of Aspergers often) and his Dr. thought he should have a further review. He had tests with a neurosphychologist that confirmed the diagnosis. I was surprised b/c my son is very social, but he doesn't engage in two way conversations. He just talks and talks. The diagnosis is scary, but it's a high functioning type of autism. The best news is that once he is considered Autistic, he can get a lot of free support at school. Good Luck!

Holly - posted on 12/23/2009

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Quoting kati:

aspbergers syndrome? something else?

how do you get a child examined for aspbergers and what are some of the things they look for in a child with this disorder? my 9 year old has always been different, and doesn't know how to act socialially. he's been diagnosed with adhd, but i feel like there is something more. i;ve looked at pamphlets and stuff and he does have alot of the requirements to be diagnosed, but alot of the other requirements he doesn't have. i don't know.... are there any other social disorders out there, he's not violent or hateful, he just doesn't act the "normal" way in social situations.



Take him to your Peditritian. They should be able to give you someone that can diagnose it if they cannot.   My 11 yr old nephew was just diagnosed with it, but not until he got into major trouble at school and the whole thing could of been averted with a diagnosis.  My sister never did that because she was afraid of him being labled, but it has helped tremendsly.  The teachers now know and help him and know how to deal with him.  They have changed many things with his schedule and classes ( not any special classes just advanced ones) to help him fit in more.  Hope this helps. 

Lynda - posted on 12/23/2009

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If you think he as aspergers you need to get him assessed by a psycologist whose "interest" is autisim spectrum disorders which aspergers comes under. My husband has aspergers and there is different levels so your son my not totally fit the "mold" but still it would be worth getting him assessed.

Victoria - posted on 12/23/2009

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Hi kati firstly if you have concerns I would go to your doctor and ask for a refferral to see a child phychologist. At the same time you could get the school to get an educational phsycologist involved.

good luck viccix

Kim - posted on 12/23/2009

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my daughter is 10 years old and was diagnosed with aspbergers syndrome about 3 years ago. your son must be seen by a psychologist or psychiatrist. they will be able to help you. Also check to see if your sons school has an Autism specialist in your district they should be able to help you also. There is an awesome book that you can check into and it will give you lots of good information on how to handle a child with aspbergers and also in which steps to take to get him help. I can't remember the full name of the book but you can find it at barnes and noble or any book store like that. it is the top 100 questions you have about aspbergers syndrome. if i find the book i will update you with the exact name and author. but its really easy to find. just go to the book store and ask for the books on aspbergers syndrome and it will be there. good luck.

Janis - posted on 12/22/2009

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You should have your son evaluated by a psychologist, and most preferable, a neuro-psychologist who works with and understands children on the autism spectrum. Asperger's and High Functioning Autism are alike, only in Asperger's there is not an irregular development in language skills. Getting a diagnosis is a great start to understanding your child, him understanding himself, and helping your child cope with his different way of thinking/acting.

Emily - posted on 12/22/2009

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You don't have to have every marker on the list in order to be diagnosed with asperger's or autism. Ask your son's doctor to refer you to a psychologist for a full evaluation. Your county may even have free services to get an eval.. your doctor would know about this. Good luck!

Medic - posted on 12/22/2009

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talk to his pediatrician.....and dont stop until you feel that all your questions have been answered and everything has been addressed....my ex-brother in law has aspbergers and it took awhile to be diagnosed....your mom and you know best be persistant

Abbie - posted on 12/22/2009

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Call your doctor, there is a quiz they give for children @ 18 months, but I know there are tests out there that indicate a child may have that.

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