Does anyone else's child suffer from Petit Mal (absent seizures)?
Michaela - posted on 02/05/2014
My daughter is 18months old she had a febral convolsion and then a massive fit that the hospital put her on life support machine she is better now but she just stares and I try shouting and poking her and shake her arm and nothing then she comes out of it and dr is useless as this can happen three -four times a week can anyone tell me what I have to do as it worries me thanks in advance.
Jodi - posted on 08/09/2009
Carly, the meds do stop the seizures, but the problem is, especially at his age, that the meds are so dependent on body weight, and every time he gains weight, he has to go back and have his medication adjusted. The first lot of medication he was on didn't work very well, and they have changed it now, and it seems to be working, but she does find that every time he has a growth spurt he gets worse.
The side effects of the medication include extreme tiredness. He is 5 and in pre-school this year, and he is really struggling. His medication is such that he has to have it right on time 3 times a day, and one of those is at midday, and by about 12:30, he is sleepy and cranky. They are currently discussing whether in fact he can start school next year (our school year starts in February) because he really isn't coping. I can't tell you which medication he is taking, or too much detail, but I can see how much it does affect his life, and I just hope an pray he will outgrow it.
I know everyone responds to the medication in different ways, and it may affect an older child differently to a younger one, so you may not have the same issues, but definitely talk to your doctor and find out as much info as you can about all of your options.
I can really understand why you are concerned, and it must be very difficult for her. I hope you find a solution that works for you guys :).
Carly - posted on 08/09/2009
hi jodi my little girl has this for the last 1-2 years it is getting worse like your friends son she just stops in the middle of what she's saying and stares into space for up to a min!!! the dangerous part of it all is that if she is out walking and she has a seizure she will KEEP walking even onto a road!!!! (which has happened twice) the are becoming more often. did the medication your friends son take stop the seizures or half then does the med have any side effects. at the moment it is effecting her day to day life she cant go with her summer camp in day trips for fear that she will wonder off or swimming for fear that something worse will happen!!!
thank you for getting back to me
Jodi - posted on 08/08/2009
A friend of mine has a 5 year old who has it pretty bad. Since he was about 3, he'd just stop in the middle of what he was doing and stare, then suddenly be back to what he was doing. He did it so often she figured there was something wrong. He was put on medication for it in the hope it would train his brain out of it by the time he was 5, but that hasn't happened yet. She has been told he could still grow out of it, but it is really hard to know.
Ciera - posted on 08/08/2009
i did take medicine but i would always forget to take it and i did not think it helped anyway. everyone is different tho cuz they would not have made it if it did not somewhat work. well it slowly started to go away in about a year or two, i would just get less seizures everyday.
Carly - posted on 08/08/2009
thanks ciera my little girl (i think) has it (she's having tests done but at the moment but they are 98% sure) she eight years old she finds it embarrassing if it happens in front of her friends at least if it is confirmed i can speak to her friends and explain to try and make it a bit easier did you take medication and did it help. what age were you when you grew out of it
Ciera - posted on 08/08/2009
i used to when i was in grade 7 but i grew out of it. i used to blank out and forget when i was then i would get a bad headache. so if your baby seems to be a little irritant that could be why. but with petit mal seizures they are likely to grow out of it :)
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