Andrea - posted on 11/30/2009 ( 15 moms have responded )
My Daughter Jaya was born at 36 weeks she was 3lbs 8oz and 16in. With a birth defect called Gastroschisis.. ( her large,small Intestants,bladder, stomach,overies, and galbladder were all out side her belly) she sepent 7 week in the NICU, wasn't aloud to feed for almost a month, ( i pumped) Had a silo put on her inside to protect them from harm.. Had surgery when she was 7 days to put it all back in but there wasn't enough of her to cover everything so we could see inside our little girls belly for 2 1/2 months.. Got to hold her on a pillow when she was 8 days old.. was on a vent for 11 days.. When she came home we were up every 1hr to 2 hrs for feedings the had med every 3, 6 and 12 hours.. Had to change her dressing ever 12 hours to start and then every 24 hours then every other day and had to do it in a starile way.. Plus i had a 19 month out little boy with me at all time.. i was able to stay at the hospital with my mom there to help me as much as she could.. So i was just courios if any other moms babies had any other problems... Jaya is now almost 8 months old is 17lbs and 25 3/4in... has problems with moving food and i looking at more surgery here soon... Hope all of your babies are doing good..