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Had shocking news yesterday - My little girl of 2.5yrs has a missing Uvula (dangly at the back of throat)

Pam - posted on 01/23/2009 ( 2 moms have responded )

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Took my girl to the Speech Therapist yesterday because she is having trouble pronouncing some words, but fully understands what we are saying etc ... Infact she is above the normal rate for her age with speech sentances etc ..



But upon looking at her throat my speech therapist said her Uvula is missing ... Im devestated for her .... We have been through alot in the past and she is our miracle girl ... I feel i have let her down somehow ... Daft i know ..



I know its not a life threatening condition .... I wouldnt mind but she only had a dr looking in her mouth a few weeks ago as she had a cold etc & needed antibiotics, but they didnt say a thing ....



I am awaiting an appt to go to Guys Hospital, London, to see their speech therapist ..



Does anyone else here know or have a child with this ...



Much appreciated



CraftyP .. UK x

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2 Comments

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Leslie - posted on 01/23/2009

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Hi, Pam. Just wanted to let you know that we have a 2 1/2 year-old who was born with a partial cleft in lip/ nasal area and a bifid, or clefted, uvula - in other words, her uvula is there, but it is split in half. Even though the cleft in her lip was visible from birth, the bifid uvula was not found until much later - they often can't tell with little babies, especially if there is no other reason to look closely. I just wanted to share that our Patricia Rose has not had, and hopefully will not have, any serious problems due to this condition, and to let you know that you've certainly not let your daughter down and weren't negligent in any way - uvula problems seem to frequently go undetected! Also, I wonder if your daughter's missing uvula has anything to do with a type of cleft - there is such a thing as a submucous cleft of the palate, which is not visible, and is sometimes made known by problems with the uvula. (This submucous cleft is fequently not a problem, either - in fact, the plastic surgeon who corrected our daughter's cleft has a submucous cleft, himself, that never became problematic.) We take our daughter to a cleft/cranio-facial center of a nearby children's hospital - perhaps you have something similar available to you in the UK? We did learn from the cleft/ cranio-facial center that our daughter should not have an adnoidectomy (commonly done in conjunction with a tonsilectomy), so perhaps you should check into this for your daughter, as well. Anyway, it sounds like you will be following up with some excellent speech therapists, so I'm sure all will be well. Know of our prayers for you and your miracle girl! Good luck, and God bless you!

Sandra - posted on 01/23/2009

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they remove people's uvula's so they stop snoring and they have no problem talking.  I always thought that the uvula was a holdover from an evolution thing personally.



I wouldn't worry too much and it's good to have it checked out, but she sounds like a lovely special child and she's certainly movie star cute!

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