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How can you make sure you know when febrile seizures occur at night?

Michelle - posted on 06/15/2011 ( 8 moms have responded )

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My 21 month old daughter just experienced her second febrile seizure. Luckily my husband heard her make a noise while he was getting ready for work and went to check on her. Our biggest fear/concern is that she could have/possibly has had a seizure through the night without either of us even knowing that it happened. Does anyone have any tips on how to make sure you are always aware when these febrile seizures occur? Is there a special monitor we could buy?

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Jennie - posted on 09/07/2012

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My 2yr old nephew started.having seizures tabout.2 wks ago. He had 7that we know of. They.have to be the scariest thing I have

ever experienced. I now worry he will have.onr while everyone is sleeping. Even slreping with him doesnt ensure he will be heard. He doesnt makr a sound and movement isnt enough to wake.anyone. What can we do?

Michelle - posted on 06/16/2011

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Thank you so much for these links and resources...scary, but informative and empowering. We are currently co-sleeping with our daughter as well, but I don't see that as a long term solution if this continues throughout her childhood.

Jennifer - posted on 06/16/2011

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Try this site: http://www.emfit.com/. Our daughter also has seizures at night, however we use a seizure alert dog as well as a pulse oximeter (she has some other issues as well). Another site with great resources for febrile seizures is http://www.dravet.org . Hope this helps!!

Katherine - posted on 06/15/2011

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Febrile (fever-caused) seizures affect many children between the ages of 3 months and 6 years. Febrile seizures are not the same as epilepsy, although in rare cases they may be the first seizures experienced by a child who develops epilepsy later on.

Febrile seizures occur when a child’s temperature rises rapidly, usually to 102 degrees or higher. There is often a family history of febrile seizures; they are most common around 18 months of age and affect between 3 and 4 percent of all children. Thirty to 40 percent of children who have a febrile seizure will have another one, but most children grow out of the tendency as they grow older. About 3 percent of children with febrile seizures go on to develop epilepsy.

In children with epilepsy, fever (as well as some drugs, medications and sleep deprivation) may trigger seizures.

http://www.efeasttn.org/children.html

Katherine - posted on 06/15/2011

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I searched on the net and found nothing. Thanks for pointing that out, Kirsty. I was also going to suggest co-sleeping too.

Dana - posted on 06/15/2011

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Michelle, have you talked with your doctor about it?

Kirsty - posted on 06/15/2011

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Hi Michelle,



My child to suffers febrile seizures...I feel for you they are so scary... he has had 18 seizures in only 10 months :( He is now on a medication called clobazam which seems to be helping.

I have heard you can buy seizure mat that lets you know when the child is having seizure as they lay on it when alseep.... Maybe search around on the internet for one??? I now co sleep with my boy as I am to paranoid he will have a seizure in his sleep :(

Take Care

Katherine - posted on 06/15/2011

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The only thing that could help is an anti-convulscent.

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