I HAVE TWINS WITH A COMPLETE AGENESIS OF THE CORPUS COLLOSUM ( ACC) ANYONE ELSE

Lacey - posted on 12/31/2009 ( 5 moms have responded )

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WE FOUND OUT IN THE NICU WITHIN A FEW DAYS. THEY WERE CHECKING FOR ANY BRAIN HEMORAGES AND INSTEAD FOUND THAT THEY HAD IDENTICAL BRAIN SCANS. ANYONE ELSE HAVE A SIMILAR SITUATION? I'M LOOKING TO SELF EDUCATE AND PREPARE FOR WHAT'S TO COME. WE HAVE A FEW DEVELOPMENTAL DELAYS AS WELL, BUT STEADY PROGRESS...

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User - posted on 08/24/2012

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hello my daughter has acc as well. she is three and she isnt walking yet or crawling, but i im very patient and believe with therapy she will soon. :)

Geralyn - posted on 12/31/2009

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God bless your beautiful twins! You are an incredible mom who is and will be a great advocate for your children. Your researching is a great idea, because knowledge is power.

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