Just looking for help!!

Sarah - posted on 04/01/2012 ( 7 moms have responded )

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My son was born 2/1/12. He will be two months old tomorrow. He is our first baby. He had a rough start, and was diagnosed with Severe acid reflux after having a Upper GI done at one month of age. He is on Zantac .06MG twice a day. Hayden is a very fussy baby, screams a lot, and I know that he is in pain. He was eating 4 ounces every 3 hours, vomiting at least 6 times a day. His pediatrician sent us for the Upper GI to rule out Pyloric Synopsis. (spelling) Hayden gags, chokes, has even choked so bad he has turned blue.

We have recently added cereal to his bottles to try and keep the formula in him. We switched to different bottles/nipples, he is also on Alimentum formula powder. It seems as he done great for the first few days, and now two weeks into adding the cereal we are back to square one. He is gagging, choking, throwing up, when he burps he gags, sometimes cannot catch his breath. The last two days he has lost all interest in eating. He will eat a 5 1/2 oz bottle for his first two feedings of the day, and the rest of his feedings he will take 3oz at the most. He is very gassy, burps and gags a lot. We feed him in a up right position, we try to keep him still as can be for one hour after feeding, keeping him up right.

It seems as though he does fine after a nights sleep, around 4pm everyday is when he starts to refuse bottles, turns his head away, pulls knees up to his belly, screams a pain scream, will not even take a pacifier unless I keep trying. He has a cough that he has had since he was a few weeks old, and also sneezes often, and has done so since he was born. Since he was born, I have had him in the dr's several times, and all the Dr can say is "he is gaining weight so I am happy." I am not a happy mother, I know when he is in pain, which is all to frequent. I'm not sure that it is normal babies gag, choke, throw up, and scream constantly at a certain time on a daily basis. Sometimes it takes him a bit to even catch his breath.

I'm at wits end, I feel helpless that I cannot take his pain away, and would like any advice I can get. He went 24 hours with no BM, finally just went as my husband was feeding him. When we first started the cereal in his bottle, his pediatrician said it would constipate him. He was going 3 times a day, soft, light brown/yellow in color. Last week he started 2 times a day, and in the last three days he has gone twice. They are loose stools, dark green. Yesterday when he was screaming, pulling knees to belly, was biting hands (obviously hungry) but would not eat, I tried a warm wash cloth on his lower abdomen. He would stop crying, smile, flail his hands and feet and babble. I done it twice, and it lasted 10 minutes and he was back to screaming again.



We took him to the ER Saturday and found out he has esophageal spasms, and they said to see our pediatrician. He now has a worse cough than before, throwing up more and more frequent, gagging constantly, even in the midst of babbling he will cough, the gag and choke. I plan on calling his Dr first thing when they open, but he has not helped us at all, and in the mix of trying to find a new ped. dr, I was informed he has no insurance. I called caseworker and they said there was a paperwork mix up, sorry, and could take 2 weeks to get his insurance back. Im at a loss as appose to what our next step it. Anyone have the same problems? Any ideas??

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Ronda - posted on 04/21/2012

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Is there any way you can breastfeed at all? Even for a little bit of the time? It may help some. As for the insurance, I don't know as I am from Canada. I have heard there are "fee" clinics there some places, maybe one of those can help? Also, researching the internet helps sometimes. Try to find sites that are from universities or hospitals, even foreign ones (UK, Canada, Au). Good luck and try to hang in there.

Krista - posted on 04/02/2012

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Poor little mite -- and poor you!



And yes, you definitely need to find a new doctor, as it sounds like his existing doc doesn't really care about how much your baby is suffering, as long as he's gaining weight.



Can your caseworker make any sort of notation so that you can still get medical care even during this lapse in your insurance, particularly where the lapse was not your fault?



I was reading online, and it says that reflux can be aggravated by big feedings. 5 1/2 oz is a BIG bottle for a 2-month-old. I wonder if it might help matters if you give him smaller feedings, but more often. Even if it's just 2 oz at a time.

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DeAnna - posted on 07/20/2012

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i was googling to try and find an answer to the same thing your baby is going thru, except mine doesnt cough, but has the hiccups at least five times a day. she is on alimentum, but even similar with the doctor situation, shes gaining weight so hes happy. she hasnt slept more than fifteen minutes without choking. she is almost four weeks but everything you described is exactly what my little ones going thru.

Shelly - posted on 04/28/2012

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My 2 youngest were reflux not as bad as your little boy by any means it certainly sounds like your little boy has a serious health issue hon and may even need surgery to correct the problem. I do however suggest adding natural yoghurt to his bottles. Yoghurt is a natural stomach settler and will also thicken the milk also put him on a lactose free milk this might help too. I recommend putting him on goats milk for my daughter it was the best thing in the world and you should be able to get it from a health food store. From that you will just have to find out what formula to make it up to I would suggest about 1/2 milk to water and a little milk sugar and add a baby vitamin. Don't boil it just heat it. If you get it from a health food shop it is already tested. then add the yoghurt. I still say he has a serious health issue and this is only a stop gap to try to ease his pain not fix the problem.

Catalina - posted on 04/27/2012

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I don't have this problem, Sarah, but i am so sorry that you do! Sounds terrible, and I'm so sorry that you've had to go through it.



Here is what I would do, go and see another pediatrician, maybe 2 others, see a specialist and a naturopath, an acupuncturist and a midwife. All of these doctors will have different diagnoses for your son, but that's fine, find out every possible solution, do all of the natural ones and follow your gut with any other!



I have very little trust in M.D's due to my own experiences and like to research all medical fields. I have found that most midwives know more about babies than anyone else!



I hope all of this gets better for you!

Ronda - posted on 04/27/2012

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I will pray for your baby! ~hug~ Way to go momma for hanging in there and demanding help for your little one. God Bless

Sarah - posted on 04/21/2012

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Thanks to you both that replied. I took him to a Cardiologist and found out that he has a heart murmur and an extra artery. The cardiac Dr cleared him as far as his heart. I also got him into a GI specialist after DEMANDING something be done, and the GI dr put him on a new medicine (Axid), I feed him when he wants to eat, what he can tolerate which is anywhere from 2 to 4 oz every3 to 5 hrs. I am waiting on the GI specialist to get back to me, he is going to look over the reports and rule out any problems the artery could possibly be causing with his esophagus.(which COULD be why he is vomiting and choking so often) So far, the new medicine seems to be helping him, and I switched formula to Alimentum RTF. I will keep updated when I can. ALSO, for any of you moms out there that are prescribed Reglan, I know for Hayden, it was HORRID. Once we started it, he began vomiting more, screaming constantly, not sleeping, irritable, small body tremors, and all around was not good at all. I stopped giving it to him, and within a day he was a whole new baby.

Best of luck to all you moms who are dealing with GERD, its a daily battle, but I have faith that we are getting better with it! ♥

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